I am a 34 year old female with this condition & everything that my doctor has tried has failed in getting it under control. Currently I am on oxygen 24/7 and I have a CPAP machine with oxygen at night due to sleep apnea. Unfortunately, I also have seizures, fibromyalgia, rheumatiod arthritis, lupus, depression, panic/anxiety disorder, I also have 4 spots on the front of my brain which my doctor does not know what it is. I know that sarcoids can spread to other organs but doctor says that it generally stays in place?? However, I have been having vision loss in my right eye, my pcp checked my eyes and I could only read one letter on the 2nd line. Can sarcoids be affecting my eyes now. I am scared. My lung doctor has dismissed me as a patient due to the this statement: I don't know if I can help you, more than likely you have had this disease for over 10 years and the other doctors just let it go. So in other words he didn't want to be stuck in the middle. Waiting on disability court date
2006-07-13
05:12:42
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8 answers
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asked by
~Sheila~
5