I was born with Hirschprung's Disease. I want to start a web page about my experiences, for I am 30 years old now. I have so much information to share and I want to help. If you know anyone with the disease, I would like any info you or they could give me about their own (or child's) experiences; so that we could help others who need it.
I (and my family) had to go one step at a time. I was the first to have the intestinal pullthrough surgery. (the first to survive with it, as far as I know) They weren't sure it was going to work and decided to try this experimental surgery; there wasn't anything else to do. I have had learn how to control my bowels and deal with all the problems that comes with the disease, by going through it. So, whatever I have learned, I would like to use to help others. Please, if you have any information that you think could be helpful to others, I would love to compile everything I can for my web site.
And if you have any questions, feel free to ask! :)
2006-10-02
13:38:56
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2 answers
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asked by
LadyMagick
5