My daughter is the most kind and beautiful child I know, I love her the way she is but I worry about her future with out a name for what makes her special. She has moderate mental retardation, she is smart enough to know she is different. It breaks my heart to see her hold herself away from other kids because she is scared they will reject her. Her skin is extremly dry and it cracks due to pseriosis and exzuma. Since she has hit puberty her bones have weakend. She feel in our house(on carpet from standing)and broke her jaw in two places. She has bone spurs on her elbows and knees. She is showing hemihypertrophy now in her hands, feet, and breasts. She has abnormal facial features acording to her pediatrition. She looks like anyone else to me. Asthma is geting to be scary also. Genetic testing was performed 4 years ago with no diagnosis, going to be tested again next month. I know I cant change her I love her the way she is, want to know what to expect in the future.
2006-09-04
04:24:44
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8 answers
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asked by
melissa l
2