I am tired of all of the conflicting information. It is awful that there is no official diagnosis and he has been seen at a prominant childrens hospital regularly, the school evaluations, the random evaluatuions at places without his history ( so he can be taken at face value). Everyone contradicts eachother and I am at a loss. ( these are all conflicting Dr's. words not mine each Dr. has stuck by his or her opinion for years) Velo Cardoi Facial disorder, but no facial similiarities and only palipitations, and no genetic back up, Kabuki Syndrome but no features, Mental Retardation I.Q 52-63 with low muscle tone , but tone is okay it is loose joints, and OCD , no it is Autism, no because you can not have Autism and M.R. , delerium seizures no that is not it it is a frontal lobe, syndrome features, no he looks like his father, I could go on .. I need to know what is the problem so that I can find the best solutions. I can not find a support system for family's with this issue
2007-09-02
19:06:38
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11 answers
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asked by
sweet pea
3