best cystic fibrosis lung transplant hospital?

Question

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Answer 1

I had my lung transplant at Barnes-Jewish Hospital/Washington University in St. Louis, MO and have zero regrets or anything negative to say about the experience. Everyone from the docs to the nurses to the food service and cleaning employees were top notch. Although I was quite used to a medical routine, having followed one since early childhood, they made sure to thoroughly explain everything to me and by the time I left the hospital a week after the surgery I was completely at ease with my new medical routine. They were also great about including my family - husband and parents because they know those supporting the patient are a vital part of the process too.

We currently live in Pennsylvania and I've been to HUP (Hospital at University of Penn) in Philadelphia for a couple of check ups and was not at all impressed. If I had an emergency I would NOT allow myself to be taken there for anything. I return to St. Louis for check-ups even though it's several hundred miles away. Enough said?

I would also avoid having it in Houston. We lived there up until relocating to St. Louis for my transplant. I considered transferring my listing from Barnes to Houston so that we wouldn't have to relocate, leave our home, etc. Before I made my decision my insurance company called me and said that I could transfer my listing if I wanted to, but they would treat it as out of network, meaning they would pay nothing on it, if I did. Note that the hospital and transplant docs were listed as in-network in my insurance program but there results were so poor that they couldn't support it. Obviously my decision was easy to make after that.

I've heard that Chapel Hill, NC is also an excellent transplant center if you're located toward the east coast.

Bottom line you have to consider your situation and you have to be completely comfortable with your transplant team. If you visit a center and it just doesn't feel right then you need to go elsewhere. Transplant is a team effort between you and your transplant team - for the rest of your life.

Best wishes.

Answer 2

I'm not sure where you live but I have Cystic Fibrosis and I have had quite a few friends get transplanted. There is Brigham's Women's Hospital in Boston, Cleveland Ohio, Gainsville Forida, & one in Los Angeles, I'm sure there are more around the globe but those are the ones that I know that are good. Good luck and my prayers are with you.

Answer 3

Any major teaching hospital ( a hospital attached to a medical school) should have a lung transplant team which will treat all transplantable lung diseases, not just CF.

Answer 4

No, only the lung transplant is needed and maximum of the time achieved. the middle could be wonderful. besides the actuality that they are going to have new lungs, the viscosity of the mucus nevertheless impaires and damages different considered necessary organs and the transplant provides in common terms some years to the existence expectancy.

Answer 5

'before i had my bilateral lung transplant in Louisville,Ky I was getting ready to move to St.Louis so if you are in MO that is where i would start looking close to home because it isn't something you want to start doc jumping with