Sick since he was
just a baby
Colicky and
screamin’ out
Having troubles
entering this world
Mama seizured,
passing out
Juvenile Arthritis hit
just after he hit six
All the while, a broken heart
lay silent in the mix
And his road’s been paved and patched my friends
but, it’s far from being smooth
Eleven years have come and gone
and there’s still some pits and grooves.....(to be continued)
2007-10-11
03:36:33
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9 answers
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asked by
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3
in
Health
➔ Diseases & Conditions
➔ Heart Diseases
I found out today that my son Tylar does in fact have a prolasp (right vent into the left vent)
he also has developed mass muscle tissue that has caused a severe
weakness to the bottom of his heart and is causing the prolasp to get bigger but, still remain plugged.
We are now waiting for the Doctor to call back for a confirmed appointment at the Boston Children’s Hospital.. They aren’t worries so much about the prolasp but, the mass of muscle is straining his heart and causing it to work 3 times harder then a normal heart which is causing “rapid” flow that may in time cause rupture. I can’t finish the poem without crying and he is home til Monday as he’s quite upset. We are now considering charity for flight to Boston. If you know of any good charities, please email directly @ shadowrai69@tds.net as I will be keeping the phone lines free much as possible. We should know something as far as a date later on today, I will let you all know
2007-10-11
03:37:05 ·
update #1
(He classifies with a unique case of Double VSD that rarely occurs in Caucasians but, mostly in Orientals, I just don’t want them to try and use him for study (sigh)
Again, thank you so much for your support, Love you all forever, Shad @)~>~
2007-10-11
03:37:25 ·
update #2
SHAD I ;I just read you poem and story of your son; and oh shadow i wish i could do something as i know how much pain your in.Try RONOLD MCDONOLD HOUSE.THEY WILL HELP PAY FOR SURGERY AND PUT YOU AND YOUR FAMILY IN A HOUSE OR HOTEL WHILE HE;S HAVING SURGERY,My Prayers ARE WITH YOU SWEETIE; WISH I COULD DO MORE .lots OF LUCK ALWAYS peachie 1
2007-10-11 04:06:52
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answer #1
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answered by Cami lives 6
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Shad, darlin, I sent you an email with my phone number. Call me if you need me. Any reason. I'm here for you. This is going to be a hard time, and you need all the friends you can get, and this friend is ready. I have grown to like and respect you a great deal, so here is my shoulder to cry on, my back to beat on, my ears to cuss into if need be, my eyes to reflect your feelings, my voice to soothe your frazzled nerves. I wish I could be in a position to give you my hands to comfort you, but alas we are too far apart. Be strong while you can, lean on me when you can't. We will be continuing to wish you and him the best. You have some good friends on here, use us, please. I hope I am speaking for us all.
2007-10-11 04:24:09
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answer #2
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answered by Dondi 7
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All of us are supporting you Shad. Set up an account for donations within your Bank where we can transfer the funds to aid your Son and help you in your search and take you out of your dark World. You are very loved little Lady never forget this.............!
2007-10-11 04:45:21
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answer #3
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answered by Anonymous
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This is very sad
but I can also see
the heartache you are going through
From reading this poem
this is about your son.
My prayers are still with you and him.
I can also see where the poem said to
be continued.
Its okay to cry
you are scared
and I am sure that Dondi
will share some support for you too
2007-10-11 04:09:09
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answer #4
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answered by sweet_blue 7
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i don,t liv there so i can't possibly help but even bein a foreigner 2 u i shall pray 4 u & tylar.God bless u as i know he can't watch his children in pain 4 a long time.u hav suffered much.its time u get all the happiness u want!i'm on ur side.shad!
2007-10-11 23:57:53
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answer #5
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answered by aditi 3
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From where? There is a local company that has been known to use their corporate aircraft for mercy flights. I'll have to see if anyone I know is still involved.
2007-10-11 09:49:32
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answer #6
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answered by Tom K 6
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Sorry to hear about your child, anyway he is a God's child and I wish him health.
I can understand what a mother's feelings are, so you better pray for his health.
I think, everyone on the forum is with you Shad.
God bless your family.
2007-10-11 07:48:51
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answer #7
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answered by Dr.Qutub 7
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Check MakeAWish foundation they help families with very sick children.
2007-10-11 04:07:47
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answer #8
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answered by Tapestry6 7
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my little one has heart disease and is facing major heart surgery soon
i just want to wish you loads of love and hope all is well
take care my thoughs are with you i know how hard it all is
hugs
2007-10-11 05:50:28
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answer #9
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answered by donnajaneindigo 4
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