2007-08-22 06:53:10 · 3 answers · asked by alison412305 1 in Health ➔ Diseases & Conditions ➔ Respiratory Diseases
i no what it is, my son was born with it 16 yrs ago,and i no its a very rare condition,but would like 2 find other parents.
2007-08-22 07:12:37 · update #1
Do you think it may be better to look it up on the net?
On the top of this page is the "Search" option
2007-08-22 07:07:58 · answer #1 · answered by Spanner 6 · 0⤊ 0⤋
I don't have a child with Schwachman-Diamond Syndrome, Alison, but if you're looking for support you might try looking at the following sites.
If you're in the UK, the first link below has contact addresses and telephone numbers.
2007-08-22 22:09:06 · answer #2 · answered by micksmixxx 7 · 0⤊ 0⤋
In the Daily Mirror UK today, there are two little girls(cousins) who have this syndrome. Perhaps you could contact them through the newspaper.
2007-08-22 15:43:43 · answer #3 · answered by Anonymous · 0⤊ 0⤋