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my daughter is 17 months old and she has so they say severe asthma they have tested her for allergies and supposedly she has none and also for cf and that also came back normal she keeps being addmitted to the hospital ever month or every other month at least is there anything else that could be causeing her breathing problems

2006-07-06 03:15:41 · 12 answers · asked by STEPHANI R 1 in Health Diseases & Conditions Respiratory Diseases

we go to the connecticut childrens medical center and have been going there for 1 yr and not any better then when we started going

2006-07-06 03:26:12 · update #1

she has had this problem since she was six months old and i guess what i would like to know are the test that can be done and what the tests are for she has already had a bronchoscopy and a modified barrium swall amounst others for her gerd

2006-07-06 05:07:22 · update #2

12 answers

we need tests done to see what's going on with the baby. is it just recently that the baby started having breathing problems or was it way back from when the baby was born.

there are a lot of respiratory diseases that can occur among children and/or infants. but we need more tests to see what's going on.

2006-07-06 03:34:42 · answer #1 · answered by Anonymous · 0 0

2

2016-07-27 07:18:11 · answer #2 · answered by ? 3 · 0 0

My daughter was also in and out of the hospital at that age. She has asthma. It was awhile before I accepted it, too.

She also had the full battery of allergy tests, and they were all negative. One thing her pulminologist tells me all the time, though, is that until they are 5 or 6 years of age, you can get a lot of false negatives with allergy testing.

Her asthma is out of control. Your job, along with your daughter's doctors, is to figure out how to control it. Before you can figure that out, you need to figure out what triggers it. My daughter is a cougher, not a wheezer, and her trigger is any form of illness. Cold, ear infection, etc, anything like that will pretty much guarantee an asthma attack right along with it. When she's not sick, nothing really bothers her, but as soon as she's sick, everything triggers her.

Keeping a log will help with this. Mark down in a journal every day how her asthma was that day, what meds were given, what activities she did, what the weather was like (my daughter gets worse with big changes in temperature in the spring and fall)... eventually, you will see a pattern. I only had to do that for a few months, now I only make notes if her asthma is acting up.

Once you know what starts it, you will learn what the warnings signs are. You'll work with her med team to determine what her sick plan should be, and you'll figure out when to implement it. A lot of it is trial and error, sorry to say, and sometimes you will have to scream to make yourself heard, but remember that YOU are her parents, and no one knows when there's something "not quite right" better than you.

Good luck to you. My daughter was about 3 1/2 before I felt it was really under control, and this is the first year she actually didn't miss more than an occasional dance class because of it. It's not easy, but you can do it.

2006-07-12 09:51:55 · answer #3 · answered by Quilt4Rose 4 · 0 0

You have gotten allot of good information here from others and I would just like to add what my dotors told me to do when I was dx. Get rid of carpetting in your home. Get rid of all drapery. These can be replaced with hard wood floors or tile, and for the windows I use Blinds and wooden Valance. If she has Stuffed animals make sure you put them in the dryer at least every other week I have found these keep them free of dust. Try to keep the stuffed animals to a minamal amount. vacuume her mattress when you change her sheets if she has a plastic cover as on baby beds, clean with a good cleaner and then make sure you rinse well. Pets should be bathed at least once a week if you have them.I know you said she had no allergies when tested nor did I, except to polyester and to adheshives, and that was on my skin had no relation to my breathing. Make sure there is no mold in your home, There are experts out there that can come and check as well as spray your home to make sure that it will not happen. If you have had any mold in your home at all before this is a good thing to do just because you can't see it doesn't mean it doesn't ecsist and they can't test for all mold's at a allergy test. By what you have written it sounds like you have already seen a pulmonolgist if not find one that speicalizes in pedatric's. Watch what you do her laudry in double rince her clothing, most soaps leave a residue. Wrie down everything you do in a day as well as what she does in a day from what she eats to where you may go. what the weather is like and how she feels. this will maybe help in pinpointing what is her tiggers and also help the doctor know where to go with a diagnoses for her. God bless you and your family, I know this can be very stressfull. Please feel free to contact me as I can tell you some of the testing I have been through to dx my illness, which may help you.

2006-07-06 21:15:55 · answer #4 · answered by showmegirl77 2 · 0 0

More likely than not, it is asthma or one of the things already listed by the others. But another possibility (very rare, but it happened in my daughter so I know it does occasionally happen in kids) is an interstitial lung disease. Some possible symptoms of the chILD diseases are clipped below, but not every kid has all symptoms. For instance, my daughter did not show any radiographic evidence (although she was obviously affected) until after respiratory failure.

(Possible symptoms:
Fast breathing
Use of "helper" muscles while breathing (You may notice that the child's ribs or neck muscles stand out while breathing in. In other words, you can see your child working hard to get the air into their lungs.)
abnormal chest x-rays or CT scans
needs supplemental oxygen
failure to gain weight and/or height (may be known as "failure to thrive")
persistent crackles, wheezing or other abnormal sounds when listening to the lungs
recurrent pneumonia
recurrent bronchiolitis
recurrent cough)

No matter what the diagnosis is, your daughter should see a good pediatric pulmonologist. And remember, you know your daughter better than anyone else. Trust your instincts. If the treatment you are using is not working for your daughter, call the doctor!

2006-07-06 06:16:23 · answer #5 · answered by chILD Mom 4 · 0 0

My brother is an asthmatic and after ten years his asthma has shown no sign of improving. He has been to several doctors but they didn't help much.

If you want a proven, all-natural way to cure your asthma, without having to pay for useless medications with harmful side-effects, then this is the most important page you'll ever read.

2016-05-15 01:17:52 · answer #6 · answered by Anonymous · 0 0

modified barium swallows do not always show GERD, the gold standard test is ph probe study and/or scoping the stomach.
I have went down the road of hospital stay after stay, with my 10 month old son. He has laryngotracheomalacia (floppy, collapsible airway in layman's terms) and also severe gerd, it took 4 different medications to find the one to treat him, and 2 bronchoscoscopies, 1 stomach scope, barium swallow, 2 pH probe studies (one to diagnose and 1 to reevaluate), and about 15 hospital stays.

his breathing conditions were awful due to all of the reflux he aspirated into his lungs, he has had RSV, croup x at least 10, pneumonia, broncholitis, e-coli in the lungs, u name it..

when they did the stomach scope it showed how floppy his esophagus was, and that was the cause of the gerd....they also put him on elecare formula, he is now THANK GOD doing 100percent better.

I am a respiratory therapist and he scared me many of nights


does she make any unusual sounds when she breathes, like a crowing???

does she sink her stomach in when she is breathing?

my son done both (on good days)

2006-07-08 19:35:55 · answer #7 · answered by steveangela1 5 · 0 0

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2016-04-30 19:53:06 · answer #8 · answered by ? 3 · 0 0

I don't know where you live, but it sounds like you are not getting the BEST, up to date, information. The are some great children's hospitals around the country, and you need to do some research (on the web) as to which have specialties in pediatric COPD.

You average pediatrician or local hospital is not equipped to deal with this, but will not admit it!

Good luck.

2006-07-06 03:23:24 · answer #9 · answered by profdave99 3 · 0 0

1. Congenital cardiac defect
2. Recurrent respiratory infection secondary to immunosupression
3. Chemical pneumonitis from environmental pollutants in your house
4. Respiratory infection secondary to high mold counts in your house
5. Childhood cancer
6. Acid-base imbalance causing hyperventilation.
7. Abnormal airway anatomy
8. Most likely--just what they told you- "RAD Reactive Airway Disease (Asthma)"

2006-07-06 03:24:49 · answer #10 · answered by lampoilman 5 · 0 0

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