Hereditary angioedema - can anybody tell me anything about it that I might not know?

Question

I have been doing research as to why I keep getting hives, and weird swellings popping up randomly around my body such as my arms, legs, feet and hands. I have been to the doctors, they can't seem to find anything wrong with me. Then I found out about HAE. I am shocked because almost every symptom presented within the reading I had done describes my problems. I have had problems with my feet for over a year now. At least 4 or 5 times per month, for at least 72 hours per time, my feet swell up so bad and it becomes almost unbearable to walk. I literally have to walk on the sides of my feet, and can't even leave my house. I am sick of feeling like this, and I want answers. Since the doctors can seem to give me none, I am setting out on a joruney to find answers for myself, and then maybe I will have something to present to the doctor for him to go on. Pretty sad that doctors make so much money yet they fail to do their job to really earn what they make. Any information is appreciated!

Answer 1

There is a new drug that came out last month in Europe and Australia. Not yet released in the US, but apparently, US citizens have been using it. .