Marfans, Aorta?

Question

I am 15. I have Marfans syndrome and a problem with the cusps around my aorta. (The cusps seem to be growing) Are there any pre-cautions that I should take to ensure a better shot to live longer?

Answer 1

here is a shot for better & longer living, which I have searched out for you:

Diet

* No special diet is needed.
*

Activity

* In general, patients can remain fully active unless their symptoms limit them. Patients should be discouraged from participating in demanding sports because several highly trained athletes with unrecognized Marfan syndrome have suddenly died from ruptured aortic aneurysms.
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* Competitive and contact sports are potentially dangerous because of underlying aortic weakness and dilatation, valvular insufficiency, ocular abnormalities, and skeletal problems. Patients should avoid blows to the head (eg, in boxing, high diving) and to protect themselves against blows to the globe (racquet sports) with cushioned spectacles.
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* To protect against pneumothorax, patients should avoid the rapid decompression associated with quick ascents in elevators, scuba diving, and flying in unpressurized aircraft.
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* Patients should avoid activities involving isometric work such as weightlifting, climbing steep inclines, participating in gymnastics, and performing pull-ups. These exercises cause excessive elevations of systolic blood pressure and may lead to sudden death.
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* Nonstrenuous activities and sports (eg, golf, walking, fishing) are recommended. Appropriate exercise is physically and emotionally beneficial.

Answer 2

Go to www.marfan.org
For a support group and all the information to help you with all your questions.