My friends baby?

Question

She just found out her 2 1/2 month old son has CF. Does anyone know of any encouraging words to say to her. All she keep saying is the life span is not long at all.

I dont know what to tell her and know little about CF.

Also please inform me about bad this disease is.

Thanks

Answer 1

You know. I have CF and am 25. All I hear is that life expectancy now is 37 When I was born they told my mom life expectancy was I wouldn't make it to my teens. As medical advances come along the life expectancy changes. So you figure in the 25 years I been here the life expectancy went from early teens to 37... By the time her child is 37 Life expectancy will have changed to 50s or 60s and by the time that comes around it will again change.There are all kinds of medical advances and many more to come by then. Or they could die in a car crash tomorrow. Statistics suck and to stress about what may or may not happen is a waste of energy. Live life and Enjoy her child while he is a child and plan to send him to college and to pray that she will like whomever he plans on marrying and If her son is sterile as 98% of men with CF are.. Then to enjoy any adopted or foster children or to stick by them through the fertility crap. :)
As for info specifically on CF go to CFF.org or CFRI.org

Answer 2

CF life span is indeed shorter than average, but is by no means brief. There are many developing therapies (including gene therapy) to treat CF and prolong the lives of those who have it.

In general, CF is a genetic disorder that causes thickening of the mucus in the lungs. It is indeed a terrible disease, but with proper, proactive management can lead to a long productive life.

As with many diseases, there are varying degrees to which CF can affect someone. Some live quite easily for a long time before truly becoming ill with CF, and others die at a young age.

A good friend of our family had CF and died at age 29 -- but he was also sickly from the beginning and had a particularly bad case of CF.

This is truly horrible news to receive regarding a beautiful new baby. I can't imagine the horror. Remind her to get as many opinions as possible regarding treatment, and to be diligent regarding pursuing new therapies. Quality of life for her son can be very good if the proper things are done.

Best of luck to her and her baby. I will continue contributing to the CFF!

Answer 3

CF is a tough one. My best friend's daughter was diagnosed shortly after birth 18 years ago and is doing great! Keeping her child healthy is going to be a lot of work, but things are never as bad as they feel in the beginning. Have her contact the Cystic Fibrosis Foundation for support and guidance. www.cff.org
I wish her well !

Answer 4

CF children are living a lot longer these days. I know several past their teen years. I know one little boy who is 8. He is so awesome. She just needs to keep up with the treatments and it will help.

Answer 5

I never heard people with CF has less life span.

Individuals with CF must eat a healthy high-calorie diet and
take special vitamins. Most people must also take
medication to get more nutrients from the food they
eat. To breathe better, many people with CF need
help clearing mucus from their lungs each day. Some
medications can also prevent lung infections and
help with breathing.
their physical and mental growth is normal

only thing is they need special medicines and special health care

Answer 6

Cystic Fiborosis is basically a disease in which the body produces thick mucus and it clogs the lungs which makes it hard to breathe and it can cause infections too, and it slows down the digestion system because the digestive enzymes comes from the pancreas and mucus clogs it too.

BUT!!! DONT WORRY!! Just pray, pray, pray. And don't tell her negative things, tell her that It will be alright and that her son is not going to die, and if he does hes gonna be in heaven smiling down at his mother!!!

My hearts go out to u, ur friend and her son.

God Bless!! =D

Answer 7

keep praying
if she prays she will be alright