fibromyalgia???

Question

I'm a freak, super freak, I'm super freaky!! I have been suffering terribly from this uncurable disease. Paid doctors lots of money to tell me nothing is wrong. I cant push myself to make it through a 40 hour work week anymore. My body hurts sooo bad, my headaches, and I am exhausted after a short time. I have tried antidepressants, and have been using vicodin for pain. I am desparate for help. No one understands what I am going through, I look like a fool. Has anyone been where I am and has anyone found relief?

Answer 1

I have Fibromyalgia and what you feel is absolutely normal for this terrible condition. most people do not understand what a Fibromyalgic is going through. I have written an article about Fibromyalgia and it's far too big to post here. I'm enclosing a link where you can read it and it also has ideas to help you manage the pain yourself.

I do recommend you take the supplement CoQ10 in soft gel form, 100mg three times daily. After a few weeks you will feel an increase in your energy.

If you have any further questions please let me know,
Billie77

Answer 2

Hi.I know how you feel sinceI have the same thing.I have been on many prescriptions to eliviate the very thing that you have.The first thing you must do is to accept your fate,it will reduce stress,adrenaline ect.which provoke the pain that you describe.Taking baths as hot as you can stand it increase blood flow,stay in tub for at least 30 minutes.Upon leaving tub drink lots of water since you will be dehydrated.This method helps to eleviate much of the pain that you feel.I dont know if I can tell you the drug that helps me as doing so may violate guidlines but here goes.Muscle relaxants help and also a drug called Elavil will dispell much of your pain(side effects are drowsiness)they come in various strenths.If you take a"blue"while at work,this will help you make it through the day.At night you might take a "yellow"but obey your doctor if he gives it to you.Do not discontiue abruptly,you will not sleep very well.A certain benzodiaz.which starts with a "c" also will greatly alleviate pain.My fibro was caused by trauma,but however you aquired it ,.its the same animal.I hope that I have been helpfull,best wishes to you.

Answer 3

First of all don't think you look like a fool. You know if something is wrong with you. Doctors don't know everything! Have you actually been diagnosed with fibromyalgia? There are other illness' out there that are very similar to fibromyalgia but isn't. And there are alot of things out there doctors don't know about and some they WON'T acknowledge only because it's not in their text books. I know doctors are very expensive but don't give up. Keep trying other doctors til you find one that will listen to you and help you.

Answer 4

Join the club. There are thousands and thousands of people who suffer from illnesses that have not been diagnosed correctly -- yet.

Keep looking for doctors who take you and your claims seriously. If you hurt, don't worry about how you may, or may not, appear to others. Your symptoms can mirror other diseases and disorders:

Differentials

A number of other disorders can produce essentially the same symptoms as fibromyalgia. Other disorders known to produce similar symptoms are:

* Chronic fatigue syndrome
* Depression
* Ehlers-Danlos Syndrome
* Gulf War syndrome
* Influenza
* Lead poisoning
* Lupus erythematosus (SLE)
* Lyme disease
* Mercury toxicity
* Myofascial pain syndrome
* Tendonitis
* Tension myositis syndrome
* Thyroid disease
* Vitamin B12 deficiency
* Vitamin D deficiency
* Whiplash-associated disorder

I was diagnosed with Late Stage Lyme Disease after suffering for nearly 25 years with your symptoms.

Do you live in an area where there are ticks? Or, did you ever go hiking or to the beach where there might have been ticks? Many of your symptoms are strikingly similar to Lyme Disease and, unfortunately, the disease does not always show up positive on the test. The treatment for long-term Lyme Disease is controversial -- heavy duty antibiotics -- so you need to find a doctor in your area who is well-qualified to treat it and who doesn't mind bucking the establishment.

While the disease isn't usually fatal, it has some hateful side effects. For example, if the bacteria chooses your right temporal lobe to reside, you can suffer from neuropathy in your left toes. When my Lyme is active, my feet and legs swell.

Believe it or not, Wikipedia seems to have one of the most thorough explanations of Lyme and Fibromyalgia.

I'm going to give you all the symptoms of Late Stage Lyme so you can see how a disease can affect you in all the ways you have described.

Late stage symptoms

Lyme disease in its tertiary form can have a multitude of symptoms. The symptoms appear heterogeneous in the infected population, which may be due to innate immunity or borrelia sub-species bacterium. The late symptoms of Lyme disease can appear months after initial infection and often progress in cumulative fashion over time. Neuro-psychiatric symptoms often develop much later in disease sequence, much like tertiary neurosyphilis.

Physical:

* fatigue
* muscle pain (myalgia)
* joint pain with or without frank arthritis
* radiculitis
* rash
* cardiac arrhythmias
* tachycardia (too-rapid heartbeat)
* nausea or vomiting
* adrenal disorders
* immune suppression
* urinary disorder

Neurological (can effect central or peripheral components):

* muscle twitching
* polyneuropathy or paresthesia
* Bell's palsy
* encephalitis or encephalomyelitis
* vision problems (eg. nystagmus, double vision or intermediate uveitis)
* sensitivity to light, motion, or keratitis
* hyperacusis (severe sensitivity to sound & vibration)
* vestibular symptoms (balance disorder may be mediated by CNS or inner/middle ear) and other Otolaryngologic symptoms[72][73]
* seizures
* myoclonus
* ataxia

Neuropsychiatric:

* panic attacks, anxiety
* depression
* short-term memory loss
* sleep disturbance
* hallucinations
* depersonalization
* neurocognitive impairment (brain fog)
* psychosis (rare) including diagnosis of schizophrenia and bipolar disorder[74][75]


While you are in the process of being diagnosed for your physical symptoms, it is important to be seen by a caring psychiatrist? Not only can this M.D. help you with the psychiatric components, s/he is a good resource to discuss what the other doctors are telling you.

Good luck.

Answer 5

I don't have fibromyalgia myself, so I can't tell you anything that's worked for me. I did want to mention though that there are a lot of warped people out there who claim to have cures for such incurable diseases. They don't. They just want to make money from other people's illnesses. There's a Web site called ChronicPainConnection.com where you can find information and talk with other people with fibro so you can share information and see what has helped other people. Karen Lee Richards writes about fibro on that site, and she knows what she's talking about. She has both fibro and chronic fatigue syndrome. She and the people who use that site really DO understand. Please check out http://www.ChronicPainConnection.com

Good luck. I hope you find relief soon.

Answer 6

Have you been diagnosed with Fibromyalgia? You said doctors are telling you nothing is wrong, so why do you think you have fibro? Did you diagnose yourself? Who is giving you the Vicodin if doctors say nothing is wrong. I'm confused. I really don't know what the question is. There are ways a doctor will now if you actully have fibromyalgia or not. If you don't have all the symtoms it could be something else. I hope you ask again I'm curious what the doctors did say.

Answer 7

My sister has fibromyalgia. She struggled for many years to get that diagnosis as well. She struggles, like you do, to get through a work week, but has found the one main thing that is getting her through.
She is seeing a chiropractor. Her regular use of a chiropractor keeps her spine in line, which prevents any of her spinal nerves from getting blocked or pinched. This makes a huge difference.
There is another woman at my chiropractor office with fibromyalgia who also says that chiropractic care has made a HUGE difference in her life.
I would recommend that you seek a consultation with a chiropractor in your area. (I prefer the Gonstead method)

Answer 8

Most reputable doctors don't recognize fibro as a "real" disease. That is probably why they tell you nothing is wrong...what they might mean is that they can't find anything wrong with you.
I'm assuming they are giving you the vicodin to appease you. I too have my doubts about fibro so I'm probably not a good one to answer, but if you're feeling real pain then you should continue to go to doctors until it is solved...if it is all in your head then maybe a psychologist could help.
I get migraines but the meds that I take work for them well. I'm tired as well but my diet is lousy! You could try to alter your eating/sleeping habits and maybe this would help with the fatigue??
I've seen a lot of women get addicted to presciption pain meds claiming unexplained pain (fibro) so I'm a little leary of the disease. I truly believe that real pain comes from a cause.

Answer 9

my mother suffered from the same thing for about 4 years.
no one ever successful diagnosed her. she had a fibromyalgia point test done, where they poke you in so many points on your body, and she was one or two "ow's" away from being considered a fibro sufferer. but she had the test on a "good" day... so... ?
she somehow got the notion to try powdered sulfur. in australia you can buy it at chemists/parmasists it comes in a plastic screw top container called MSM.
just ask for powdered sulfur.
it's the same sulfur that our bodies naturally produce, but some times we dont produce enough, and that causes pain and fibromyalgia.
on the bottle it says to take 2tbs in a glass of water 2 or 3 times a day. it wasn't enough for mum.
she took up to 4tbs 4 times a day for a week and slowly reduced the amount over the next year.
it tastes FOWL but it worked. no more pain. mum no longer takes MSM or any other drug, and she is pain free.
she suggested it to my grandparents (all four of them) who suffer from arthritis, and it stopped the arthritic pain as well!!

try it, it's cheap to buy and easy to try... i sincerly hope it helps you.
and you can not over dose on it either, your body will flush the excess out, so don't be afraid to take more then 2tbs for the first week.

xx

Answer 10

Most women who have this disease - have not been covered properly by male authority. You have not been nurtured - you are stressed, tense, depressed, anxious, striving and driven. You need to start talking to God and roll all these burdens that you can't handle onto Him and trust Him to handle it. You cannot continue in this FEAR based type life style. There is a church in Thomaston GA called Pleasent Valley that can minister to you many have recieved healing from this disease. You have tried everything else what you got to loose?