Does anyone here have Transposition of the Great Arteries?

Question

Just looking for people with the same Heart Condition
I have. If so did you have the Mustard Procedure done?

Answer 1

lls1757 - If you had a Mustard procedure, then you most likely have what we call d-transposition of the great arteries. It is actually the most common heart defect causing babies being blue in the newborn period, so there are plenty of you out there! The Mustard is one of the "atrial switch" procedures first pioneered by Dr. Senning in 1959. However, because the Senning procedure was so difficult, the Mustard procedure (developed by Dr. Mustard in Toronto in 1963) quickly became the preferred atrial switch procedure. Nowadays, if possible, we prefer to perform an arterial switch (Jatene switch) because it allows the left ventricle to pump blood to the body as it would in a person with a normal heart.

The Mustard and Senning procedures saved a LOT of lives. However, we have learned that people who have had a Mustard/Senning do have things that we need to monitor for long term. Firstly, there is a tendency to develop heart rhythm problems that require a pacemaker. Also, since the right ventricle, which is designed to pump blood to the lungs, now pumps blood to the body in a person with a Mustard/Senning, it can start to wear out over decades leading to heart failure. In addition, the tricuspid valve which, in a transposed patient, is on the left side instead of the right, has a tendency to become leaky. I'm glad that you have done well, but for these reasons it is VERY IMPORTANT that you have regular follow-up with a cardiologist familiar with congenital heart lesions!

This is a growing field, and the most experienced centers for ACHD in the United States right now are at Harvard, the Mayo Clinic, and UCLA, but there are many other centers that have experts on adults with congenital heart disease. If you want to get in touch with others who are still alive today thanks to the procedure that Mustard developed, I suggest you visit the Adult Congenital Heart Association, the largest patient-run organization for adults with congenital heart diseases in the world. Their website is http://www.ACHAHeart.org and includes a message board where I guarantee there are plenty of people who know exactly what you live with! The oldest patients who had the Mustard are now into their 40s! Good luck to you! Hope that helps!

Answer 2

I was born with TGA and Have had a mustard procedure. I am 33 currently I work out 6 days a week stay active, have a 7 year old son (who was born healthy) work 2 jobs and live a normal healthy life. I don't have a pacemaker yet and show signs or reverting to 1st stage of heart failure from the working out. just take care of yourself and be active and healthy and don't over do it.

Answer 3

Transposition of the great vessels is a coronary heart illness that happens from beginning (congenital). the two considerable vessels that carry blood removed from the midsection -- the aorta and the pulmonary artery -- are switched (transposed). Transposition of the great vessels is a cyanotic coronary heart illness. this suggests there is decreased oxygen in the blood that's pumped from the midsection to something of the physique. In general hearts, blood that returns from the physique is going for the time of the spectacular fringe of the midsection and pulmonary artery to the lungs to get oxygen. The blood then comes back to the left fringe of the midsection and travels out the aorta to the physique. In transposition of the great vessels, the blood is going to the lungs, options up oxygen, returns to the midsection, and then flows appropriate back to the lungs devoid of ever going to the physique. Blood from the physique returns to the midsection and is going back to the physique devoid of ever choosing up oxygen in the lungs. it is cured by way of a scientific care general as "balloon atrial septostomy" that's non surgical scientific care.In India there are this sort of excellent variety of well being midsection offering this scientific care The instantaneous administration of an toddler with transposition makes a speciality of setting up secure oxygen tiers and solid cardiac and pulmonary function. a non-end infusion of prostaglandin, a medicine which will keep the ductus arteriosus open, is often initiated while the prognosis is suspected or shown. this might enable some mixing of oxygen-prosperous blood with oxygen-undesirable blood yet could grant sufficient mixing by way of itself. A technique noted as a "balloon atrial septostomy" is often finished as quickly as the prognosis is shown.

Answer 4

I will be 49 this month, i had the mustard procedure when i was 3. i do not have a pacemaker, but i do take 2 types of medication. I show no signs of wearing out, and hopefully wont. A positive attitude goes a long way.

Answer 5

Mustard Procedure Tga