CPAP - Help! Cannot get used to?

Question

I attended a sleep study where they found I had 50 episodes an hour. I was sold a unit that seems fine, but the mask I can't seem to live with. Since it was found that I require 16 (psi???, they never explained) the tech told me I could not go with the nasal masks and would require a face mask. Every attempt at home I get so uncomfortable and panicked that I actually yank it off in middle of the night. I know this treatment is necessary for me and everyone says that you get used to it, but I am concerned my case goes a bit farther than the norrmal experience. I dread the mask! My simple questions are outlined below. Thank You!!!!
1. Was it true what the tech told me about the 16 being too much pressure for the nasal unit? I find these much more tolerable.
2. I am looking for spcecifics on brands/models to look at. Are the various headsets interchangeable with the various brands of CPAP machines?
3. Is there a reliable source where actual people rate devices?

Additionally, I moved across the country since the test. Knowing personalities involved, the Dr. will probably not spend any time with a non-paying patient. No insurance either for a new DR.

Answer 1

Call your pulmonary doc and ask him about the nasal pillows. Tell him about your reaction to the mask and ask about using the pillows. Also there are many styles of masks so consider trying a different style. For now though call your pulmonary doc and talk to him about all of this.

Answer 2

I am a respiratory therapist, not saying i can help but here goes.
1. Yes and no. Nasal masks are more difficult to seal with the higher pressures(16). You would not want a nasal pillow system, with a pressure of 16 the air flow going directly up your nostrils would be extremely irritating and drying.

2. Have you tried the Activa mask. The nice thing about this mask is it floats on your face. It should not be "strapped down" it is a strictly nasal mask it does not cover your mouth. I have had quite a bit of success with this mask with my patients. As far as head gear goes, some head gear is interchangeable with different MASKS, but all masks are compatible with all machines. The headgear does not matter to the maker of the machine.

Do you have a ramp set on your machine? If not think about gettign one set. It does not require a physicians order. The ramp feature allows you time to fall asleep before your machine reaches its set pressure of 16. Usually ramp times are anywhere from 5-20 minutes in duration.

FYI: check with your insurance carrier. The nasal interface or the part that touches your skin is usually replaced every 3 months. the headgear every 6 months. the filters and tubing monthly I believe. Try changing masks when ever your insurance carrier will buy a new mask, that is the best way to find out what works for you. Do not let anyone tell you a mask will not work! TRY IT FIRST.

Ask your Home Medical Equipment provider if they have masks that you can take home and "try it before you buy it" that is another option.

If you have other questions and I have been helpful e-mail me!

Answer 3

I use the Respironics M Series CPAP, it has a ramp feature that starts me out at 5, and works me up to 15 in a 45 minute period. you asked if there was a reliable source where people rate the devices, I researched the net when I was diagnosed, and I found that I like www.cpap.com and they do rate the equipment on this site.

Answer 4

I have seen a nasal mask running at 16mmHg but not nasal pillows. Ask the local home care companies for a consult.