Does anyone know what this could be?

Question

Hi, I am 26 year old woman with 2 kids. And i am miffed as to what my symptoms are, i am in the uk and we can not self refer ourselves to a neorologist (sp) which is where i want to go, we are also registered with a certain doctors clinic where their are numerous doctors (gp's), i have seeked 4 different opinions within my clinic and have been told different things..

This has been going on for about 5 years, i had an mri of the head and i have had 2 ecg's (electrodes on my head) and they were all negative.. my blood pressure is on the low side of normal 105/60, But this past few months have gotton worse.. here are my symptoms:
pain in my right ear. (no sign of infections, just a scar from infections as being a kid).
ear feels as if theres wind blowing in it sometimes.
pain all around the ear. (skull area)
pain in my right temple following onto my right cheek.
pain just above my right temple.
pain above my right eye following from above my right temple.
pain down my right hand side of my neck as if its follows on from my ear.
my neck clicks when i move it sometimes grinds.
on a flare up i call it my right eye waters a little, and the areas with pain are tender to touch, tender when i cough, tender when i sneeze and tender when i move my head. (lasts few hours).
tingling down right side of my face.


I have been told, migrane (but i have had migrane and thats throbbing?), Trigeminal Neuralgia? tmj? ( i dont have an overbite nor do i grind, no sign in my teeth of that but my jaw does click when i open it). i was worried about it being a brain tumour but have been reasured that the pain would get worse, i would have high blood pressure, and other symptoms, and have been told that the sympoms i am experiencing wouldnt be seen as having one of these. so i am reasured of this, but i really want some answers and am not getting any.

I have been to the dentist ordered a mouthguard just incase, and i been refered to a dental consultant at the hospital, (can they do a ct scan?) been to the opticians, all is ok he took a pic of behind my eyes no shadows or anything..

does anyone know what this could be?

If your in the uk and see a neuro could you ask them for me? i am so desperate..

thankyou xx

Answer 1

That doesn't sound like very much fun. I'm sorry I don't know what the problem might be, but have you seen a physiotherapist or a chiropractor? Maybe something is out of alignment. Other than that, have you tried any alternative therapies such as reiki? If you have had pain for that long it might be worth a try if you can't find answers elsewhere.

Answer 2

Neuralgia,is what it most definately is mate,it takes on different forms with different people,i asked my dentist and neurologist (as i have it),and the independently of each other said Neuralgia.My in-law is a surgeon,she also said the same,warm(not hot),cloth or water bottle gently held on the site along with dyhydrocodine or 400g neurophen,will help(honestly),rest a while give yourself time,with kids it not easy so sleep when they do,this is bloody painfull i know!,Also just been told Avoid the booze this agrovates it BIG time especially cheap plonk, Good luck honey x

Answer 3

I would have to go with the TMJ
Miss alignment of the joint will cause pain and it has been known to make a clicking sound that you hear.
I think you might want to check into a TMJ realignment procedure, it might be just what your looking for.

Answer 4

Its most likely trigeminal neuralgia with a little heightened awareness on your part.... get a referral from your GP to a neurologist.

Answer 5

Yes, sounds just like Neuralgia. My grandmother has it in her jaw and when she gets flare ups, she can not eat or even swallow without excruciating pain. She takes Tegretal for it.