In my teens I became aware through the neighborhood "grapewine", that a young kid of about twelve had been secreted away for the most of his life, because he had that illness which makes the bones of the face and cranium increasingly, rapidly large.I was 15 at that time and had, as has continued great curiosity about almost everything.
One day, I decided that I'd go to his parent's house and present myself.
And so I did!
His parents were not too welcoming, but a bit intimidated by my determination to meet their son - yet they let me in.
All I told them at the door was : 'I know you have a boy-child who does not come out of the house . . I'm Grace, I'd like to meet and make friends of your son. He must feel very lonesome!
I guess that was the "open Sesame" key-remark, because they led me to this boy's bedroom. He was in the latest stages of this illness, but was kind and resolved he'd die young.
Without prying alike a loose bloodhound I made some inquiries of him and school and learning - while at the same time looked around his room filled with shelves full of books and reference materials. It looked like a special schoolroom fitted for a SPECIAL child.
On the ceiling he had a gigantic spread of the constellations. I was certain he'd study and re-studied these at night, well they glowed. Upon a large table he had a gigantic globe with pieces of coloured paper pinned to various places around the world.
(It made me wondered how often, he had effectively "mind-traveled")
I asked him if he missed schools or the company of schoolmates - and to this he said sometimes - but that he'd accepted what his growing illness had exempted from him.
His parents, he told me, so stern looking at the door, had lovingly raised him and had taught him at home.
He was happy, that despite his deformity and eventual short life - he had been loved and accepted. Something which he felt he would not have had at the exposure to "normal" children at a "regular" school . . and he was grateful to have had a caring refuge at home.
He told me, one day he'd been looking out the window, something he seldom did, unless the sheers disguised a little the harshness of the deformity. And yet, when he had not expected it, and looked out without the veil of sheers, some ignorant kid, probably not even mean-spirited, had yelled : ' Hey, there's THE Monster!.
He'd firmly decided from that day to stay within the acceptance and kindness of his Sanctuary.
Before I left, he was a bit fidgety and I apologized for my brazen determination to meet him - but he said, I am not angry or sad with that . . I was just wondering if you'd visit again . . I love to play Scrabble!
And so, I returned and returned for over 2 years, until he became overwhelmed by the illness and eventually died.
I was very glad, as I still am today to have made his acquaintance. His name was Virgilio.
Does that answer AT ALL, the issue within your question?
I hope it did!
Grace.
2007-03-17 06:10:58
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answer #1
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answered by skydancerwi 6
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