Anyone with firsthand experience with Islet transplantation?

Question

I've read alot, and heard alot about the islet transplant program, and the Edmonton protocol, but would like to hear the experiences of those who have actually undergone the procedure. How long ago did you get trasnplanted? How many infusions/parcreata were used? How long were/have you been insulin independent? Where did you have it done? Only want to hear folks who have undergone this, NOT PROFESSED "CURES" FOR DIABETES (i.e. pancreashealer, noni juice, herbs and supplements, vegan diets, cow's milk causing diabetes, etc.). If you haven't undergone this, and can't contribute constructively, please do us both a favor and don't answer. Thanks.

Answer 1

I'm right there with you buddy, we need a viable cure, no witch doctor stuff, but it does seem nobody has had it done that comes here. I have doen some reading on it as well and the risk is this, if you are controling it with medication you probably better off continuing to do so. After having the surgery the amount of medications that you must continue to take to combat rejection are quite alarming and will last forever, and if it doesn't work you could actually die. When I first heard of it I got so excited, but after reading much it cooled my enthusiasm. "Keep healthy, make sure that if they find a cure, you are in good enough shape to get in the fix my diabetes line", is what my late father used to tell me.