I understand your feelings and empathize with you. I have a terminal lung disease called pulmonary fibrosis. I was diagnosed in 2003 and given 18 months to live. Well, I am still here and it isn't because of modern medicine. It is because of a great attitude and a small circle of friends who are an important support group. My wife and 2 daughters are probably my biggest cheerleaders.
While COPD is a horrible disease, it is possible to live a productive life. You just need to adjust your expectations a little bit. You will never be like you were before the disability and the COPD, but that's OK. You need to embrace the "new you" and learn to love the life you now have.
Please email me at support@terminaldisease.com and put "attention Barry M." in the subject line. I will send you an electronic copy of a book that just might give you a little bit of hope. At the very least, it will put a little laughter in your heart.
The most important thing for you to realize is you do have worth. Your children need you. This world can seem awfully harsh and at times it looks like everything is going against you. That's what makes you who you are. You are the sum of all of those experiences and that makes you a very strong person. Hang in there and good luck to you. Drop me an email and let's see if I can help.
2007-02-18 18:04:22
·
answer #1
·
answered by Barry M 5
·
0⤊
0⤋
I am so sorry this has happened to you. You didn't say how old the kids were. You need to get in a support group,if you can't get out try one on-line. Its people like you that need support from other people with same disease. You end up isolated and that's not good for you. This is when depression kicks in and you are pretty much where you are now. I hope you are doing the breathing exercises, these are very important. Try to focus on the good things in your life. The health of your children, spending time with them. Meditation is also helpful. Reading is another way to escape. Hang in there.
2007-02-18 16:01:47
·
answer #2
·
answered by ascendent2 4
·
0⤊
0⤋
May I request that providing you have insurance-(medicare/ medicaid) that you please look in the phone book of your local area, for counselors, that will be covered by your insurance. That would give you someone to talk with about your stresses, etc. As for feellng exhausted, more than likely from the COPD, have you seen your dr. lately? Do you just use an inhaler? Maybe you need protable oxygen? Please see your dr. about this asap. The reason I request the counseling for you, and possibly for your kids as well, is is sounds like you may be dealing with depression-which considering your helath, is understandable. An anti-depressant could help with that. (I know, one more pill). Anyway, about no friends will talk with your kids about this? Am I reading this right? Or, you have no friends, and you won't talk to your kids about all of this because it upsets them? No money. Wow! Do I know that one! It's hard to budget when you have 4 kids that want everything-or at least seem to. First, are you in any kind of subsidized housing? If not, can you find a place like that in your area that you could move to - to help with your budget? Also, if you get paid once per month, please write out your budget. I find that helps me. It really helps me when I Stick to the budget. When you write out your budget, start with your total amount, minus rent, other bills. What you have left over, please divide by 4. That will give you the amount of money that you are allowing yourself to spend per week after the bills are paid. For fun things to do, spring will soon arrive, and then you and your kids can maybe go to a nearby park for a picnic once in awhile. Or, go to McDonald's with a set limit amount to spend-as a treat. Their dollar menu helps on that one too. One thing about the dr. too-have you considered getting a motorized wheelchair/scooter? Maybe your dr. could prescribe one for you. I hope this helps. I don't know how old your children are, but this is where the counseling would help them. It would help them to voice their concerns, etc., and the counselor could help let your children know about COPD-at their age levels.My dad had emphysema, so I have an understanding of what you are going thru. I truly wish you the best. Take care.
2007-02-18 16:28:18
·
answer #3
·
answered by SAK 6
·
0⤊
0⤋
the sole answer I have been given grow to be "i do no longer choose her to be categorized." as though all this performing up did no longer get her categorized yet in a different way. I even have had women that have been: Dyslexic upload Autistic in my troop, and the family individuals did no longer provide us a clue. word that those are issues that isn't ensue on a well-being historic previous, besides. We had guessed each and each of those women had some thing diagnosable.yet even asking the mothers and dads if there grow to be some thing shall we do to assist her baby get the main out of female Scouts bring about no longer something. The upload grow to be unveiled at an in one day, the place the medicine have been sent alongside. Afterwards we looked stuff up on the information superhighway, and tried some mentioned techinques - which helped her. One female grow to be relatively suffering, and that i grow to be at a loss. Then I observed her instructor, and ask what this female grow to be relatively stable at, and what she relatively enjoyed. artwork, making up thoughts, dancing - extremely some stuff that did no longer contain examining, i observed. So i attempted to come back up with "no-study" thoughts for events, and he or she did greater powerful. seems she grow to be critically dyslexic. At day camp 12 months, I had one mom who does not say something some condidion, yet gave us very particular guidance approximately what her daughter mandatory help with, and the thank you to handle her. That grow to be superb - the lady (and the leaders) had a great time mutually. My techniques: First, examine with your provider unit/community supervisor, and in all hazard your council. See if there are any rules in place to handle this. There possibly is - the well-being historic previous style is a uncomplicated protection practice, i do no longer think of female Scout coverage would conceal a girl if she did no longer have that on document. 2d - what i'd advise is: No well-being historic previous, no participation. Like no conferences (yet provided which you recognize that your provider unit and council will lower back you up if the mum complains). third, if the mum relatively does not choose everyone else to work out the well-being historic previous, her daughter would be an independently registered female Scout, or Juliette. she will ought to deliver a filled out well-being historic previous for any SU or council events, nonetheless. yet that would desire to be in a sealed envelope, and in basic terms opened if mandatory.
2016-10-15 23:47:15
·
answer #4
·
answered by ? 4
·
0⤊
0⤋
you should go to church and talk to someone their. and go and find your husband and beat him up his is a no good person. and life does suck. and your kids should be more understanding. you should not smoke if you do i know that it does not matter. and you should not get a wheelchair cause that will make you fell more helpless and that is the last thing you need. god god god god god god god will help someway or somehow. please do not give up. go out to the bar or club. or even a chatroom but watch out for the creeps. and if you have a payee for disablity do not do it find a way out of it because they will steal your money!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
2007-02-18 16:42:58
·
answer #5
·
answered by lori h 1
·
0⤊
1⤋