Hey Shawn, I'm so sorry that you have been suffering so much. I know you must be going through a really tough time right now.
I too had a PE at the age of 21, and a second one three months later. They did not know why I got mine either. Were you on any meds before you got it? Some meds like Birth Control Pills can increse a person's risk of clotting.
Do you know if the Docs did any testing to see if you have a clotting disorder? I have a rare clotting disorder, affecting only 2% of the American population. It is called Antiphospholipid Antibody Syndrome. It is an Auto Immune Disease.
If they have not found a cause for your clot, I would consider seeing a Rheumatologist. They are specialists in Auto Immune Diseases, and I think that they might be able to help you. You might also want to add a hemotologist.
I know it is really hard, but you are going to have to consider your new health condition your new normal. It was so hard for me, but I've leaned to accept it, and work with it rather than against it.
Yes, you will be on Coumadin the rest of your life. What a wretched medicine it is, but it is keeping us alive. You might also want to consider taking a baby asprin in addition to it because Coumadin protects against clots in the veins, but not necessarily in the arteries.
Watch your food intake, and try to be consistent. Vitiman K can really mess up your INR readings. You will not be able to take meds like Ibproufin, advil, motrin, Excedrin, or Alieve anymore without the express permission of your doc. Tylenolol is safe.
Check out this site... www.hemosense.com You are now able to test at home, rather than go to a lab every week. And you should go every week. Insist on it if you have to! I have gone from 1.5 to 5.0 in a matter of DAYS, and this is very dangerous!
Pay very close attention to your body, and keep a personal symptom journal. You will be able to see on a bigger scale your health condition. Never be ashamed to go to the doc or the ER if you feel you are having trouble breathing. Having a history of a PE, you will need to be careful about your symptoms, even if it gets mixed up with your asthma.
Watch out for leg cramps. Most PE's start in the legs. Take someting, and if it doesn't go away, insist on an ultrasound.
Shawn, don't be afraid to get aggressive with your healthcare. Ask for copies of your lab tests and medical reports, and start up a file.
Lastly, check out this website at the bottom. It has answers to almost all the questions you may have, and consider joining their support group. You can ask questions, or just listen. I belong, and it has helped me so much, even just knowing that there's others out there like me!
Please know that I will be keeping you in prayer. I know it is scary. And please don't hestitate to email me if you have any other questions or concerns.
God Bless,
Chris
2007-02-03 08:27:02
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answer #1
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answered by Chris 3
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that's called a pulmonary embolism. human beings over the age of 60 are at particular possibility of having this. that's in many cases led to by a blood clot interior the leg (deep vein thrombosis) and then travels as much as the lungs and gets caught there. that's a extreme situation that would reason low blood oxygen tiers, everlasting harm to component of the lung and harm to different organs that are actually not getting adequate oxygen. it is taken care of by attempting to end the blood clot getting any larger. The physique might desire to be able to dissolve the clot by itself and then medicine is given so as that new clots are not formed. those drugs are called anticoagulants (blood thinners). x
2016-09-28 08:13:24
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answer #2
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answered by ? 3
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The most common cause of a PE is from a DVT (deep vein thrombosis), these are most common in the femoral veins of the legs, however it can commonly occur without an exact source found, which is what it sounds like for you.
Treatment duration varies. Most recommend 6-9 months of coumadin for first time DVT or PE with explainable cause. Many would not recommend lifelong coumadin until you have had multiple DVT or if your initial PE was very serious. There is limited literature to tell a physician exactly where you will fit into these recommendations, so just ask the reasoning for the duration they recommend.
PEs range from clinically insignificant to life threatning, I would need to know more information about what your presenting symptoms were and how it was diagnosed to give exact details about duration of therapy or what you should be worried about. However I have cared for numerous patients with a single episode of PE or DVTs that have finished 6-9 month courses of coumadin and led othewise perfectly healthy lives. I would just focus on the treatment, go to your coumadin clinic appointments, keep your INR at range, and discuss duration with your physician.
You should be worried about the side effects and dangers of coumadin itself, your bleeding risk is very high right now. Watch for signs of bleeding, such as black or bloody stools. Do not engage in dangerous activities that may result in head trauma. Discuss all of these concerns with your physician or coumadin nurse.
Good luck!
2007-02-02 08:05:17
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answer #3
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answered by Kendall R 2
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Coumadin will thin your blood so it won't clot in your vital organs. You will, as likely as not, be on it the rest of your life. Pulmonary emboli are nothing to mess with; you were lucky to survive.
2007-02-02 08:04:40
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answer #4
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answered by holey moley 6
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Yes you can wach out for your diet, you wont belive how a good diet will help you get over it, i foud a very good 100%Natural products that you shut check out too, it realy works. Do it for your own health.
2007-02-02 08:06:50
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answer #5
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answered by javierporras1983 3
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