Disabled Parents....are you? and how has it been for you?

Question

Hi I am in a wheelchair and have Cerebral Palsy from birth as I was premature...I had my daughter 10 yrs ago naturally with Epidural...the hospital had no faccilities for wheelchairs and such like....so they let me stay in the private sector where the hospital paid for it as the rooms and bathroom were bigger.....but still I couldnt have a shower and had to wait 3 days until i got home.
The staff were very helpful and non judgemental or over helpful...when I got home the health visitor was fantastic and gave me all the support that I needed.
Although my GP at that time was harendous he told me to stop breastfeeding and just give her the bottle because its easier for me!!! He refused to come out and see me when I had an infection just after the birth....the midwife had to make him come!....in the end he booted us all off his list when my daughter was 6 weeks old! Now have a fantastic gp who supports us. What have you been thru?? Was it a good or bad expirience??

Asked this question because I wondered if things had got any better in hospitals in the last 10 yrs for people with a disability?

another thing....let me know what country your in would be interesting to see the differeces...thank youx

P.s I'm in uk

Answer 1

my mum is disabled, but not in a wheel chair like yourself. she had a terrible time with one doc when she was pregnant with me and my twin sister. her spine has been slowly fusing itself together since way before i was born, and she was told that after she had me and my sister that she'd never be able to walk again...yet she's still walking!
anyway. mum was born with club feet (feet all curled up and look like clubs on the end of your legs! nice...) so the first thing mum was worried about was club feet, then our spines, and everything else thats shes ever had problems with. the doctors checked many of these things, but ignored one huge thing that nearly cost me my life, and did cost my sisters life. my father had pryrella-extanosis (bad spelling, but basically our stomachs and intestines were not hollow like they should be). mum was insisting they checked us for it, but they refused. one day she asked a nurse why the doctors weren't doing as she asked. the nurse replied that they rarely pay attention to disabled mothers saying check this and that, even though they should.
now, this illness that me and my sister had was apparently only something males get, so when mum insisted we were checked for it they laughed at her and refused. we both went a week with no milk. until one doctor from adenbrooks hospital saw us and said striaght away that mum was right, we managed to some how get a condition that only males get!
we were rushed in to theatre, but they realsied it was already too late for my sister and took her to my parents so she could die in their arms. i was operated on, given a huge scar, but was saved. they were in such a rush to get me out of theatre and drinking that when i was sown back up, they managed to basically put a band on my tum...so now i'm always going to be naturally thin!!! me and my sister are also in many medical books as the only girls in the world to have pryrella-extanosis and its checked at birth on request now no matter what the sex!! so yea, just cuz my mum was disabled, the doctors ignored her requests and they killed my sister. kinda makes u wonder what monsters are in the world to ignore a mothers plea

Answer 2

My sister is on dialysis 3 times a week. She is a single mother with a 3 and 5 year old. Nothing at all is done to accommodate her as a mother, or to help her being so very ill and a young single mother, other than by her family. In fact she has been denied my fathers kidney before he died last week , they said she has not been very compliant with her appointments and what not, truth be told she had 10% function of her kidneys, which doesn't leave her feeling the best, along with rheumatoid arthritis and everything else that goes with Lupus plus 2 kids, all on her own, she does the best she can, and it was horrid that the transplant team would denie her my fathers kidney while he was on life support, in hopes at the hospital where my mother has been an RN for 20 years.
No I am sorry to say there are no good things to say for the improvements in health care for disabled mothers, not in ND any way. God Bless.

Answer 3

Oh wow.. he is mean.. I went on a school trip to a hospital for a class about babies and they had things for people in wheelchairs...