IT IS VERY SERIOUS! So don't even believe that it is "not that bad". You can't get rid of it any more than you can get rid of your ethnic background.
It is becoming more understood, but there are still a lot of misconceptions out there. I have Marfan's Syndrome. I am female, tall but certainly not thin. 1/4 to 1/3 of people with Marfans are "spontaneous mutations" that is neither parent has it. My mother had it and 3 of 4 of her children have it. I have a friend with Marfan's who is only 5'2". Your best bet for more "clinical" information is to go to the National Marfan Foundation" web-site. If you are looking for more personal information, please feel free to contact me.
2006-12-13 10:08:47
·
answer #1
·
answered by Enchanted Gypsy 6
·
0⤊
0⤋
The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs.
The Marfan syndrome affects men, women and children, and has been found among people of all races and ethnic backgrounds. It is estimated that at least 1 in 5,000 people in the United States have the disorder.
You can't get rid of it.
2006-12-12 17:38:08
·
answer #2
·
answered by Anonymous
·
0⤊
0⤋
Marfan syndrome is a genetic connective tissue disorder characterized by unusually long limbs and fingers. The disease also affects other structures and organs — including the lungs, eyes, heart, blood vessels, dural sac surrounding the spinal cord, and hard palate — in less visible ways.
Diagnosis:-
Although genetic testing is available, a diagnosis is usually made solely on clinical findings. A clinical diagnosis uses specific criteria that were established in 1996.
2006-12-12 18:05:00
·
answer #3
·
answered by FIASUM 2
·
0⤊
0⤋
it's a genetic condition in which the aorta is enlarged and thinner than normal, leading to possible sudden death due to aortic rupture. it is rare, almost always confined to tall (over 190 cm), thin men with long necks and narrow chests. many college and pro basketball programs test their players for marfan, along with other potential aorta/heart defects (which are generally more frequent in tall men than the rest of the population).
you cannot get rid of it per se, but there are surgical options to lessen the risk of sudden death for those that have been diagnosed with the syndrome
2006-12-12 17:41:16
·
answer #4
·
answered by Super G 5
·
0⤊
0⤋
It's a genetic condition, you can't get rid of it. I heard it's not that bad.
2006-12-12 17:33:14
·
answer #5
·
answered by christigmc 5
·
0⤊
0⤋