pulmonary valve stenosis in my eight month old daughter.?

Question

My eight month old daughter was just diagnosed with pulmonary valve stenosis. Anyone have an experience with this? Did you have cardiac catherization? Did that fix the problem?

Answer 1

Treatment

Patients with mild to moderate pulmonary valve stenosis, and few or no symptoms, do not require treatment. In more severe cases, the blocked valve will be opened surgically, either through balloon valvuloplasty or surgical valvulotomy. For initial treatment, balloon valvuloplasty is the procedure of choice. This is a catherization procedure in which a special catheter containing a deflated balloon is inserted in a blood vessel and threaded up into the heart. The catheter is positioned in the narrowed heart valve and the balloon is inflated to stretch the valve open.

In some cases, surgical valvulotomy may be necessary. This is open heart surgery performed with a heart-lung machine. The valve is opened with an incision and in some cases, hypertrophied muscle in the right ventricle is removed. Rarely does the pulmonary valve need to be replaced.

Alternative treatment

Pulmonary valve stenosis can be life threatening and always requires a physician's care. In mild to moderate cases of pulmonary valve stenosis, general lifestyle changes, including dietary modifications, exercise, and stress reduction, can contribute to maintaining optimal wellness.

Prognosis

Patients with the most severe form of pulmonary valve stenosis may die in infancy. The prognosis for children with more severe stenosis who undergo balloon valvuloplasty or surgical valvulotomy is favorable. Patients with mild to moderate pulmonary stenosis can lead a normal life, but they require regular medical care.

finally i wish the lil baby all health :)


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Answer 2

I was diagnosed with pulmonary valve stenosis at around the age of your daughter. I am now 22 years old. Around the time of my diagnosis the doctors did many tests and I had several cardiac catherizations. The doctors found out from all of these tests that my pulmonic valve was so tight and was about to close (I had severe pulmonic stenosis; some is not severe therefore surgery would not be required probably). The doctors performed open heart surgery when I was 3. They totally removed my pulmonic valve. This is the only valve that you can live without for a period of time. The valve usually has to be put back at some point because without a valve there is some leakage to the right side of the heart. For me, it will be within a year or so. Some are much earlier when they have to have it replaced and some are later. It all depends on the individual. One huge recommendation is to go to a highly ranked hospital even for the tests. Hope this helps!

Answer 3

I had a different heart condition in high school. Mine was called superventricular tachicardia (SVT) but it required a cathedar in my heart. I had the ablasian surgery twice. We're not sure if it didnt work the first time or if there were two seperate problems, but after the second surgery I havent had any problems. Speak more to your doctor, he should be able to tell you more information and answer all of your questions. For me the surgery meant putting me to sleep and inserting the cathedar through three arteries, one on each side of my shoulders and one in the groin. I have very small scars that arent very noticable and I went home the next day.

Answer 4

I don't know if it's the same but my son had aortic stenosis when he was born. After many tests it just went away and no they did not have to do a catherization. Never caused him any problems either.