i'm eighteen and have only been living diagnosed with cf for two years. when i was first hospitalized, i was given information on websites i could go to to talk with other cf patients. i never used the resources i was given but i have so many questions and now i don't know where to go. if you know of any chat rooms or the like, please let me know. thanks!
2006-10-30 04:40:50 · 2 answers · asked by jamoncita 5 in Health ➔ Diseases & Conditions ➔ Respiratory Diseases
well i am an adult with CF (Tim) now living with bilateral lung transplant 11 years now and going strong, here at your service if you want to talk e-mail is timandlinda82804@yahoo.com
2006-10-30 04:53:45 · answer #1 · answered by Tim and Linda B 2 · 0⤊ 0⤋
I am not a CF pt, but my Dr. ordered a Sweat Chloride Test for tomorrow for my son. He will be 5 in Feb. He has numerous URI's every time it turns cold, right on through spring, has had RSV each year except for last year, will eat everything is site but weighs 37 pounds at 40" tall and has the foulest smelling BM's. He is a very energetic, smart and bright child otherwise. I didn't even see this coming. I called his Ped. last week to report another URI and to see if he needed to be seen. The nurse called me back with a date, time and name of the test he needed to have. I pulled it up online and I was speechless. I have no idea if this is what it could be, but the symptoms match up and it is kind of freaking me out.
His father and I are not together, but I spoke with him and neither of us know if we have the genes that require a positive CF diagnosis. My father was adopted, so I can only go on my mom's side and there is nothing. He is not aware of anyone in his family. I guess I am just wondering if this sounds at all familiar to anyone else who has CF?
2006-10-30 07:53:29 · answer #2 · answered by angie 5 · 0⤊ 0⤋