please tell me about interstitial lung disease/pulmonary fibrosis,it's cure?

Question

please share your knowledge,experience (of patients)
tell something about it's cure like lung transplant

IMPORTANT:TELL ME SOMETHING ABOUT LUNG TRANSPLANT AS AN OPTION FOR ILD

Answer 1

My brother has IPF and I have done alot of looking into this and all I can find is that this is a long slow death w/out a lung transplant. Then the survival rate is still low. My brother is still working but has to oxygen all the time. This is very hard for him cause he works in radio on air so for him to do this and be able to breath its very hard. He is very young still (37 yrs old) and he is raising his daughter as a single parent but our mother is helping him but we keep his spirits up as much as we can. If you want a friend to talk to about this just send me an IM at kiddomomma on AIM and we can chat ok! Best wishes and take care and do alot of research about this. God bless!

Answer 2

Although there is no cure, there are many options out there. Mucolytics, chest physiotherapy, Corticosteroids, Incentive Spiromotry and EZ-PAP are some of the more common ones. Eventually the patient will most certainly have a trach and be forced to be on mechanical ventilation. If the make it that long, or choose that route that is.

Answer 3

You are right in that all cancer treatments go through years upon years of testing and clinical trials.They have to since cancer is so unpredictable, and also being that we cant detect a single cancer cell, and cant call anything cured. I didnt see anything near the top of your first link about cancer. And your second link.... They arent talking about a cure, they are talking about a med given in addition to the current conventional treatment that may help. And in what I have read, it cures nothing, only adds a couple months of life. It is a time addition treatment, not a cure. But, it has begun human trials in the US, I beleive, so thats a good thing!

Answer 4

no cure,slow death. steriods and other medicines prolong life but give you other side effects to cope with. after diagnosis about 5 years. my mother is in the very last stages of it.