i have been diagnosed with ehlers danlos after 5 years and 9 diffrent doctors later. i do not have a doctor that speclizes in this disorder yet. in the mean time i can get as much morphin and methadone that i want.i dont want anymore. i just want someone to listen undertand,and help me deal .is there somebody like this out there.PLEASE!!!!!!I Iever day is a WORST day than the rest.
2006-09-21 13:17:35 · 3 answers · asked by KIM F 1 in Health ➔ Diseases & Conditions ➔ Other - Diseases
i have been diagnsoed with EDS AFTER 5 YEARS AND 9 DOCTORS LATER. I HAVE NO PRIMARY DOCYOR THAT SPECIALISES IN THIS AWFUL AND PAINFUL DISORDER. I AM BEGGIING FOR ANSWERES AND IT SEEM NOBODY WANTS TO LISTEN OR HEAR ME.PLEASE SOMEBODY HEAR ME AND HELP ME SSSOOONNN!
2006-09-25 03:33:22 · update #1
I am sorry for you, but here are some of the good sites that will help you understand your problem and how to cope with it. As you would be knowing, this a genetic disorder that you have inherited and the best way is to understand it.
http://www.ednf.org/
http://www.mayoclinic.com/health/ehlers-danlos-syndrome/DS00706
http://www.nlm.nih.gov/medlineplus/ehlersdanlossyndrome.html
2006-09-25 09:35:00 · answer #1 · answered by doctor2 4 · 2⤊ 0⤋
I have this same dissorder and so does my 4 yearold daughter and we both see a Reumatologist. Tehy are the ones you need to see. Hope this helps.
2006-09-27 11:58:46 · answer #2 · answered by Tiffany W 1 · 0⤊ 0⤋
I don't know, but this i know........the Jesus who healed multitudes in the Bible still heals today. He is the same yesterday, today and forever. He heals all sicknesses, diseases and infirmities, and even casts out demons
2006-09-21 13:23:29 · answer #3 · answered by Book of Answers 2 · 0⤊ 1⤋