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i was told my son may have diabetes insipidus, because he drinks all day long and pees all day long and pees a ton through the nite...

does anyone have this? if so do you take medication??

do you know anyone with it??

what happens if you dont get it treated? can you go on through life wihtout treating it??

personally i dont want to get it treated because i dont believe in using medication.
what are your thoughts??

like i said we are still ushur wether or not he has it because we left the hospital when they told us we couldnt feed our son b/c they wanted to do the water deprivation test, and he hadnt ate since breakfast and it was about 6pm so i left.

-Maria

2006-08-22 14:47:01 · 12 answers · asked by Anonymous in Health Diseases & Conditions Diabetes

12 answers

Hi, you should feel very lucky to have a Doctor who even knows what diabetes insipidus is. My husband has been drinking 4-5 gallons of liquid a day for the past 20 years. We have been to Doctor after Doctor who all said that as long as he puts out what he takes in, that it is all right. I kept disagreeing. My husband got up every 45 minutes for the past 20 years to go pee, drink 32 ounces of ice water and then go pee again before returning to bed. We finally found a new Doctor who suspected diabetes insipidus and ordered a 24 hour output test. My huspand peed 20 quarts in 24 hours. We had an appointment with a renal specialist in a week and he had my husband in the hospital within 2 days running the water deprivation test. After the test was over, they gave him a shot and within 30 minutes, his mouth was not cotton dry, he did not crave the water and he started to pee like normal people. He is now on an anti-diuritic and after 20 years, he is sleeping thru the night. He is diabetic as well and has high blood pressure. We have not been able to get those two problems under control until he started getting the rest that your body requires. Lack of rest does affect the whole body in more ways than you can imagine. Please allow your Doctor to run the water deprivation test. It will not harm your child other than being hungry and thirsty for a little while. It is very important to get tested so that treatment can take place. You will be helping your child SO MUCH! Trust me, our lives have changed so much in the past two weeks. I have a husband again. I am sleeping in the same bed with him again. Who can sleep with someone who is up and down all night? I know your child is young but I am sure you want him to lead a normal life as a chils and as an adult. God Bless you and I pray all will come out well for you. Sorry so long but it is so important for you to be informed of the possibilities of no treatment.
PS
You should also be aware that diabetes insipidus is NOT related to sugar diabetes. It is often called water diabetes.

2006-08-23 16:09:07 · answer #1 · answered by Tina B 3 · 0 0

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2016-05-17 09:44:25 · answer #2 · answered by Cynthia 3 · 0 0

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2016-09-18 12:50:40 · answer #3 · answered by ? 3 · 0 0

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2016-05-14 11:34:40 · answer #4 · answered by Anonymous · 0 0

Diabetes Insipidus is a disorder of ADH. ADH is a hormone that helps maintain the proper electrolyte/water balance by telling the kidneys to hold onto water. In DI, ADH is either not produced or not effective. The ultimate effect of this would be severe dehydration, not to mention the interference on lifestyle of having to run to the bathroom every hour or so. If your son does have it, the treatment (assuming it is a production problem) is simply replacement of the hormone, which is available as a nasal spray.
I definitely reccommend having the test and getting treated. I do know a person with this, and she leads a completely normal lifestyle, with a medicine that is 1-2x daily.

2006-08-23 01:04:04 · answer #5 · answered by J 4 · 1 0

It's very serious. Medication is a good idea, assuming he has it. Go back to the ER and find out.

I wouldn't want to go through life with it. He would have to drink about 20 liters of water every day, and go to the bathroom once an hour. He would never get any sleep, ever. Does not sound like fun.

I don't believe in medicine either (and I'm in nursing school), but in some cases it's really the only way to go.

2006-08-23 03:11:03 · answer #6 · answered by Earth Queen 4 · 0 0

As I can remember from nursing school,diabetes insipidous is caused by a disorder of the pituitary gland which is a major gland located in the brain.It regulates most of the other glandular( i.e.,thyroid,adrenal,pancreas) activity in the body.Wish I knew more, it is rare.You need to follow through with the testing.In order to treat they will need to know what is causing the pituitary gland to malfunction.An endocrinologist is a specialist who deals with these type of illnesses and can usually be located near or in major medical center

2006-08-22 14:57:13 · answer #7 · answered by Elizabeth 6 · 0 0

Diabetes insipidus is the inability of the body to concentrate urine. It can come from a problem with the pituitary gland, if it does not make enough ADH (anti-diuretic hormone) or a problem in the kidney itself that does not respond to ADH.
They have to do some testing to see how his body responds to water deprivation. Don't worry, they monitor him closely and will not let anything bad happen to him.

I personally think he is safer in a hospital than with parents who are intractable in matters of their child's health.

2006-08-22 14:58:36 · answer #8 · answered by finaldx 7 · 1 0

Type "diabetes insipidus" into the space on your computer screen that says WEB SEARCH. It will tell you everything you need to know. I think this is very serious.
I just typed it in and chose #8 on the page it showed me and it gave a lot of information. Good luck, and please take good care of your baby.

2006-08-22 15:01:27 · answer #9 · answered by NANCY K 6 · 1 0

http://www.diabetesinsipidus.org/

Well, I can't find anything linking immunizations to hypothalmic functions or disfunction, but maybe that's a topic of research. Try to see if there's anything on it.

I have ideas on when she gets older, but its too far in advance. Also consider seeing an Alternative Physician in your area, especially if you do not find result or you investigate some kind of harm with your physician's approach or treatment.

2006-08-22 15:03:13 · answer #10 · answered by Cheryl L 2 · 0 1

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