He lives with OLD grandparents alone. He sneaks out to play and doesnt care about med times ect. which tells me he is in denial. Grams told me about disease not him...also denial. He obviously is uncomfortable disclosing his illness. His grams would like me to discuss with him so I can make sure I assist with knowing his med times ect so to send him home if needed. I also want to help this sweet boy as much as possible to enjoy his childhood. I will know his med times ect but how do I deal emotionally as I will also need to inform my child and prepare him for what may come sooner than later. I want to be a sort of surrogate mom so he can be the YOUNG KID that he is and yet be informed enough to ease fears of the grandparents so that we can have sleepovers ect. I need all the help I can get with getting him to communicate and open up and accept and take responsiblity for his own health and to let him know we love him and will always be here. Please help me!
2006-08-08 16:33:42 · 3 answers · asked by Mom of 7 gramma of 3 3 in Health ➔ Diseases & Conditions ➔ Respiratory Diseases
i know the teen years are the hardest times because the teen knows more than anyone else. first off let him be a kid. how long has he been diagnosed with CF? sometimes the meds can be worked around to fit his schedule and not making him change his schedule. the average life expectancy for a CF patient is now around 36 years old, with advancements in treatments. I'm sure his primary care provider can sit him down and explain the importance of why he needs to take treatments and give options and suggestions on how he can still be a kid and take care of himself
2006-08-09 00:56:48 · answer #1 · answered by Tim and Linda B 2 · 0⤊ 0⤋
he's 13 and 13 twelve months olds are not probable virtually as good with taking their drugs, extremely if that is new to them. i think of i might take him to confirm each and every thing i might desire to. He could adventure life and do stuff he desires to do... huge stuff. i think of he desires something cool to remind him of his drugs. possibly a neat digital timer or a miles less high priced pda. young infants like technologies. additionally, does he comprehend of anybody else with the affliction? possibly get some memories from books or on line approximately different infants with the affliction and enable him examine them?
2016-11-04 04:28:16 · answer #2 · answered by treiber 4 · 0⤊ 0⤋
Does the kid know just how serious his disease is? I have known many parents that want to shield their children from their own illnesses. Otherwise, it sound like the kid/parents/you should seek counseling.
2006-08-08 20:45:56 · answer #3 · answered by The_Pickle 2 · 0⤊ 0⤋