Does anyone have or know someone who has fibromylgia?

Question

If so has anyone found anything that has helped them. I am about to give up after suffering for so many years with no relief.The pain and fatigue is unbearable and i am so sick and tired of living this way.Any info would be greatly appreciated.

Answer 1

There is new research in pain management all the time. Ask your doctor to point you in the right direction of a clinic to help you manage the pain!!! I'm so serious, it really works! Also, have you tried massage therapy? If you explain to the massage therapist that you have fibromyalgia, they should be able to accomodate your needs, work lightly if needed or try acupuncture, it is on the rise again as so many people are seeing it as a viable alternative to western medicine when it fails them. Please don't give up! Please keep talking to people and trying to find solutions! My mother is in constant pain every day from a condition that no one can help her with. She is depressed and has gotten quite mean at times and is probably addicted to pain medication. I know what it's like to have someone go through what you are going through. I try to help her all that I can and at least give her good distractions. Hang in there and please message me if you would like to talk.

Answer 2

Depends on what kind of help you are looking for. I myself have Fibromyalgia, I have found some ways to handle the pain and fatigue. Since most people with Fibro require at least 8 hours of sleep, a bed that can help keep them out of pain and low stress, it is sometimes hard to find the way to get just that, let alone all of that. But there are ways, try and keep a journal of good days, keep the stress down to a minimum. And try and get at least eight hours of sleep.

Answer 3

Yes, I have/had it and I want to change your thinking about what fibromylgia is.
First of all, mysofasia pain is not muscle pain, but skin pain. There are about seven layers of skin and the deepest layers of the skin is where you are feeling the pain of mysofasia AND fibromylgia. In fact, when you have mysofasia pain on your bicep or tricep, a doctor, cannot tell the two pains apart. They both feel like muslce pain.

The deep layers of your skin could have been damaged from overexposure to heat (erythema ab igne) or overexposure to cold (chilbians) or radiation or chemicials form work or cancer or possibly broken bones, etc.

In my case, I damaged my skin from overexposure to heat from working in a steel foundry. My skin looked normal, but I had bodywide pain and fatigue. The reason for fatigue was that the sweat glads are now damaged you have a reduced abilitity to sweat. After avoiding all forms of heat, my drop dead fatigue finally healed after two years.

Answer 4

My sister has suffered tremendously for several years. She had to stop teaching. She is 95% better after many different medications and trial and error. She felt just like you. What is your email address and I can give it to her to email you . She knows of several website forums that gave her the information she needed to live pain free. AND FOR THE MOST PART, she does. She says that she will have a flare up but it usually goes away within a couple of days.

Answer 5

My old neighbour had fibromylgia , and had to get cortozone shots in her neck-- made her feel like crap for a day or 2 then she was fine for couple of months--good luck and dont give up

Answer 6

I have a client who has been treated for fibromyalgia; our office got her onto CPP Disability Benefits. She is in a clinical trial for a drug at a Toronto-based hospital that she seems to believe is helping her with her pain, which was unrelenting before this.

Answer 7

My sister has it. She has found that by doing pilates, she has been able to better control it. She also sees a chiropractor and gets a therapeutic massage once a month.