Does anyone else have Lymphedema of the legs?

Answer 1

Yes, I have of 1 leg. You need to know all you can know about lymphedema in order to manage it. You and Sandy the other person who replied are welcome to join my support group, http://www.lymphland.com is my website and support group is based in Yahoo groups, same name, there is a link to join the group from my site. I have tons of info on the site and we have an online chat bimonthly, it's a fun, resourceful group.

Answer 2

Hi,

My name is Sandy and I have had lymphedema in both legs for the past 10 years. I had cancer and went through lymph di-sect within 2 weeks I noticed swelling and pain. It took approximately three years and a boat load of doctors to figure out what I had. I have been through manual lymph drainage at Kaiser in San Diego where they taught me how to massage and bandage my legs. It is almost all I can do to keep the swelling under control. I have quit my job and moved to a colder climate in order to keep a somewhat normal life (as if that will ever happen again). I am trying to get disability but "this condition does not fall under disability guidelines"

I would sure love to correspond with someone who is in the same boat

Please contact me at [e-mail]

Answer 3

I have pitting edema (where you press on the skin for a second and it stays indented). No one has really figured the cause out yet. Tried Lasix a few years ago, but it didn't help.