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He had gained 10 but has loss two oz since thanksgiving. He cries constantly and has no muscle tone. He can't hold his head up at all, can not track with his eyes, and doesn't seem to be able to focus well (his eyes still cross ALOT). He eats wells and is satisfied after eating not wanting to eat again for 3 hours. My sister in law is beside herself. He is going to a specialist in a couple of days. They told us to be prepared because the pediatrician thinks that he will be tested for cystic fribrosis, and CP. Please if these symptoms sound familiar to anyone let us know. We what to be prepared emotionally.

2007-12-10 04:30:46 · 2 answers · asked by Anonymous in Health Diseases & Conditions Other - Diseases

2 answers

YES!!! My oldest was this exactly!! The first thing they did was test him for CF..he didn't have it. His liver levels were elevated, ended up having Alpha One Antitripsin w/liver disease. He is doing good now but there are people w/very complicated health problems. YES, be prepared for the worst. My son's pediatrician at the time told me that people with CF CAN live a long healthy life...that she had a patient in her 30's and that was good! Not very good news for a new mother w/a newborn. If he has hi liver enzymes have them check into the Alpha one, its a common disease but not highly tested for. If you need anymore info on this, plz, if you can, contact me and I can send you in the right direction. Good luck and I hope everything ends up fine. Stay strong!

2007-12-10 05:08:46 · answer #1 · answered by esbm_alf 5 · 0 0

Besides CF, there is a syndrome with no specific cause called failure to thrive. It causes similar symptoms, and can be very frustrating to deal with. Fortunately, most kids eventually overcome it.

2007-12-10 05:24:31 · answer #2 · answered by formerly_bob 7 · 0 0

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