Diffused B cell Lymphoma??

Question

My mother was recently diagnosed with an aggressive form of Diffused B cell Lymphoma. I've already done a lot of research on the matter but I want to hear from anyone out there who knows or have known anyone with this illness. What problems did they face? What was the outcome of their treatment? What is the survival rate? I love my mother very much and I don't think I could make it without her. I hope her therapy goes well and she can beat this thing. Another question I have is how long before they were diagnosed? My mother was in and out of three hospitals and was even seeing a Cancer specialist for two years before she was offically diagnosed with it. No one knew what she had until last week and she went from a happy, independent woman to incoherant and unable to take care of herself in less than 2 weeks! Does anyone have any anwsers for me? Please?

Answer 1

Here is a link to clinical trials.
http://www.clinicaltrials.gov/ct2/results?term=B+cell+Lymphoma&state1=NA%3AUS%3AOH
Hit the refine search tab or map tab to see about finding studies near you.

Here are some links to Non-Hodgkin's lymphoma of which this is one type of that disorder..I include links on bone marrow transplants...I don't know if that applies necessarily to adult non-hodgkins or not for sure...

Adult Non-Hodgkins
http://www.cancer.org/docroot/CRI/content/CRI_2_4_1X_What_Is_Non_Hodgkins_Lymphoma_32.asp
http://www.cancer.org/docroot/CRI/CRI_2_3x.asp?dt=32
http://www.cancer.gov/cancertopics/types/non-hodgkins-lymphoma
http://www.leukemia-lymphoma.org/all_page?item_id=7087
http://www.leukemia-lymphoma.org/all_page?item_id=8965
http://www.nci.nih.gov/cancertopics/wyntk/non-hodgkins-lymphoma/page2
http://www.cancer.gov/clinicaltrials/results/non-hodgkins-lymphoma (results of non-hodgkin’s clinical trials…2 pages)
http://patientrecruitment.nhlbi.nih.gov/Lymphoma.aspx (stem cell trial to treat non-hodgkins lymphoma)
http://www.lls.org/all_page.adp?item_id=452658&OTC-07PS_CoPay&attr=LLS_FeatureBarker (copay assistance for lymphoma patients)
http://www.leukemia-lymphoma.org/attachments/National/br_1171992654.pdf (Understanding drug therapy and managing side effects…need adobe reader)
http://www.copays.org/ (Patient Advocate Organization..copay assistance with lymphoma)

Bone marrow transplants
http://www.nbmtlink.org/ (National Bone Marrow Transplant link)
http://www.marrow.org/ (National Bone Marrow Donor link)
http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Lrn_about_Disease/ALL/index.html (National Bone Marrow Donor program…acute lymphoblastic leukemia)
http://www.marrow.org/ABOUT/Connecting_Patients_w_Donors/The_Registry/index.html (about the National Bone Marrow Donor program)
http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Undrstnd_Treat_Opt/Lrn_Clinical_Trials/Find_Trial/index.html (clinical trials by type)
https://web.emmes.com/study/bmt/ (Bone Marrow Transplant clinical network)
http://www.marrow.org/PATIENT/Plan_for_Tx/Planning_for_Tx_Costs/Financial_Assistance_for_Trans/index.html (financial assistance for bone marrow transplant patients..ie leukemia,etc)

Nutrition and Support for cancer patients
http://www.cancer.org/docroot/MBC/MBC_6.asp? (nutrition for cancer patients)
http://www.cancer.org/docroot/MIT/mit_0.asp (supporting cancer patients)

3 books on disease symptoms and treatments

you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse)

Answer 2

Your Mom is very scared. I had follicular lymphoma (B), which is slow growing. The strange thing is, faster growing tumors are EASIER to kill with radiation and chemotherapy. If they are caught in time, you have a BETTER chance of survival than with what I have (also called Indolent). Mine is under control now, but every year the scan is very nerve racking.
Best to your Mom and God bless. There are lots of good new medicines for lymphoma.