My 8year old son has HSP. see link below, It is a severe rash with no cure.?

Question

he looks so rashed its scary and all doctors say is wait for it to run its course. This condition can last months. He can't sweat or shower or the pain and itching get too intense and he cries. he takes benadryl and ibuprofen for itch and pain but it doesnt really work. any ideas for relief or cure? please! its so horrible. http://www.aafp.org/afp/980800ap/980800b.html

Answer 1

i know how you feel about a rare condition . I also have a rare condition . but have no relief excipt to just grin and bear it. we may never know why.

Answer 2

The article says that the immune system isn't functioning well enough, so I wonder if vitamin B-12 injections might help. Also, try applying some baking soda to the rash, just as you would powder. Try a small area first, just in case... Baking powder seems to work well for so many things, like boils, pimples, cuts, etc. It's also soothing. At this point, what have you, and your son, got to lose?
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Answer 3

I assume that the doctor is monitoring your son's blood pressure and his urine periodically.

You could ask your doctor if steroids are appropriate, but that's a two-edged sword. Often it just masks symptoms which return when steroids are withdrawn. Plus, there are other side effects. You need to discuss risks versus benefits.

Kids with HSP are sometimes in a great deal of pain, and it's hard to watch them suffer. But the vast majority recover completely.

Answer 4

I realize as a parent, you desperately want your child to feel better. But it is terribly irresponsible coming on here with the intention of taking some stranger's advice on your son's health, without even seeing him. His rash is most likely the result of an abnormal immune response to something and needs to take its course. Go with what the doctor's said.

Answer 5

My son had this when he was around that age. The docs think it was triggered by an allergy to penicillen. It lasted about a week. He threw up for 3 or 4 days straight. He urinated blood and spent one night in the hospital because I insisted. It ran its course and he was fine in about two weeks, but it was horrifying. I had him drink plenty of water to wash out the penicillen after he stopped vomitting so much. Pretty much they told us we had to just wait it out. I feel for you because I was a basket case!!!!

Answer 6

hmm...I feel for you. That stinks...I think benadryl is probably the safest thing...how old is your son? How about oatmeal? Is your son on an antibiotic, just incase it's bacterial? What about a steroid of some sort?

Answer 7

Follow your doctor's advice. Don't expect to find a magical cure here. We're not qualified to play doctor.

Answer 8

omg!
i had Henoch-Schönlein when i was 10, but mine was cause by me having measles without the red spots, i was wrongly diagnosed, given the wrong antibiotics, also given penicillin, which i found out i was illergic too, but i did ok, only downside is, i now have very dry skin.
keep your lil one well, they will recover in time.