She is 30. From what I understand it is very rare. They are not giving her much more information than what I have already told you here. My question is how deadly is this? I am finding conflicting information. It is a mass on the outside of her esopogus. They gave her no information in the form of what stage it is in. They just said it was high grade. Can someone tell me something more about this kind of cancer?
2007-11-01 08:58:13 · 4 answers · asked by ellijaymom 2 in Health ➔ Diseases & Conditions ➔ Cancer
Make sure that your friend is being seen by a sarcoma specialist or at a cancer center that specializes in sarcoma. This is critical for the best chances of survival. High grade sarcoma is treatable but is very rare and needs the expertise of a center that specializes in the disease.
Sarcoma Centers
http://sarcomaalliance.org/centers.html
As for the staging information, sarcoma is 'staged' according to groups . . so the fact she is high grade most probably means it is advanced. Those are just semantics though . . because staging and groups are used primarily to determine the best course of treatment.
She needs to find out the specific name of the sarcoma . . if possible she should have samples sent to experts who can identify the sarcoma. There are over 60 different subtypes of sarcoma but there are people who specialize in identifying this disease.
I would suggest that your friend or whoever is advocating for her care visit the following websites and join some of the mailing lists. She will discover a wealth of information and tons of support.
Sarcoma Alliance
http://sarcomaalliance.org/
People Living with Cancer: Sarcoma
http://www.plwc.org/portal/site/PLWC/menuitem.6067beb2271039bcfd748f68ee37a01d/?vgnextoid=9367ea7105daa010VgnVCM100000ed730ad1RCRD&vgnextfmt=cancer
NCCN: Soft Tissue Sarcoma
http://www.nccn.org/professionals/physician_gls/PDF/sarcoma.pdf
ACOR: SARCOMA: The General Sarcoma (Cancer) Online Support Group
http://listserv.acor.org/archives/sarcoma.html
Best wishes to your friend.
2007-11-01 11:51:48 · answer #1 · answered by Panda 7 · 1⤊ 0⤋
HIgh grade tissue sarcoma's have a lower survival rate than low grade. A lot depends on the size of the tumor, the involvement of her surrounding tissues and the health of your friend and if it has metastasized.
You would have to know more about the stage and the size of the mass to know about how to treat it.
I know I have given high doses of chemotherapy for the same kind of tumor, but it was in the patients buttock. I gave chemotherapy 1st, then surgical removal of the tumor and then more chemotherapy and I believe some radiation.
The treatment will be horrific. She will be obtaining a surgical consult with a thoracic surgeon, a radiation therapy consult and an Oncology consult. They will be determining the best route to take for her cancer.
It always breaks my heart when a young person like your friend gets cancer. My prayers go out to her and you and her family. Keep your faith and pray.
2007-11-01 12:45:54 · answer #2 · answered by happydawg 6 · 0⤊ 0⤋
I am sorry to say that it is very serious.I don't know what stage she is in but hope the new chemo is able to help her. Good luck
2007-11-01 09:08:06 · answer #3 · answered by impurrfect10 5 · 0⤊ 0⤋
MY MOM PASSED AWAY FROM IT AND SHE WAS SICK FOR A YEAR , AND NEVER TOLD ANY ONE .. AND WENT INTO THE HOSPITAL AND NURSING , A TOTAL 2 WEEKS AND THEN SHE PASSED AWAY
HERS STARTED IN A UTERUS
MY MOM DID SMOKE BUT WAS NOT A HEAVY SMOKER... SHE WAS AROUND THE CHEMICAL BLEACH ALOT , SO WE DO NOT KNOW , IF THIS PLAYED A FACTOR OF IT .
2007-11-01 09:52:28 · answer #4 · answered by THIS ACCOUNT CLOSED 2 · 0⤊ 0⤋