A question about wheat allergies/celiac disease..I really need some help?

Question

I have asked a question about this before: For as long as I remember I have suffered from horrible, horrible canker sores. Also, I have NO energy. I am exhausted, I am constantly fatigued. After I eat, I get really hyper. Then crash. I get migraines that last all day. I'm only 15, I don't think this should be happening!

So what I am asking is this: My mom thinks that I have an allergy to wheat. I looked up Celiac disease, my friend has it, and it says that some people have chronic symptoms, others go unnoticed. Can I be allergic to wheat without having Celiac? Or could this be Celiac disease? I sometimes have really bad stomach problems, but not as often as I used to. Also, when I eat, even just a small amount, my stomach bloats so big, a woman thought I was pregnant!!

I am going on a gluten free diet for a while to try to see if it helps with my headaches...but what does this sound like?

Answer 1

You are describing some of the most common symptoms of Celiac Disease (CD).

Fatigue, canker sores (apthous ulcers), headaches/migraines, acid reflux and/or indigestion and bloating are very common with CD.

You can be allergic to wheat without having full-blown CD. However, you sound like a 'true celiac' patient.

It would be wise to get tested (a simple blood test can be done to determine if you are likely a celiac patient). If you follow a true gluten-free diet, then get testing, the tests results will be negative (a false negative).

Please take this possible diagnosis very seriously; the long-term consequences of un-treated CD are very dangerous. Get tested - then try a gluten-free diet.

Best wishes and good luck.

Answer 2

I agree, it sounds like celiac to me as well, and you should try and get a diagnosis. Problem is, you have to keep on eating the stuff for the tests to work properly.

If you just want to try going gluten free for a few weeks and see if that makes things better, don't forget that gluten is hidden in a lot of places where you would not expect it. This article: gives you a list of many of them: http://www.glutenfreedietbook.com/articles/10.html

Is there anyone else in your family that has celiac? If so, then it is even more likely that that is what you have.

Answer 3

It certainly sounds like Celiac Disease. Feel free to email me for more info but these sites should tell u everything u need to know. and how to get tested for it.
www.csaceliacs.org
www.celiac.com
www.celiac.org