How has your child's celiac disease changed your life?

Answer 1

well i am a kid with celiac disease.it definitely has made my family and myself alot more aware of things and more catious.i've been faced with a cancer scare twice.i am joined to a website for people of all ages with celiac disease.i think the url is www.myspace.com/celiacgurlrox
or you can email me

Answer 2

Well, it is not my child with Celiac, it is me. And even being in my mid twenties when diagnosed it was VERY hard at first. I'll tell u this, I cheatd A LOT at first! I had just gotten preg one month after being diagnosed and going GF (not a coincidence bc we'd been trying for awhile! Going GF helped the infertility!) So I cheated a lot bc I didnt know better and was pregnant and craving things! Then funny enough, an episode of House about a girl with Celiac who kills her baby (not on purpose) actually scared me straight. I know it sounds silly but there I was with my newborn thinking, what the heck am I doing? Im cheating with food, when Im really cheating my family if I slowly kill myself!
So I got straight, started a local CSA chapter and am now preg again with my second child due in Jan! So far my first son does not test positive for Celiac and shows no signs but we'll keep retesting him every year. And we'll test this one when the time comes. I would like to think it wouldnt change MY life much if he's diagnosed, but it woudl surely change his bc he already loves bread and cookies, etc and he's only 2! Mostly it changed my life in the aspect of money! GF food is so expensive and its much harder to eat out. So convience stuff is harder, but u make do.
I know that doesnt exactly answer your question but I thought I'd put my two cents in anyway! :)
Best of luck!
www.csaceliacs.org
www.celiac.com
www.celiac.org

Answer 3

It is difficult, for about 6 months I just could not eat bread, but I could eat muffins, and biscuits. (NO YEAST) I finally determined that it was not the flour but the yeast.

My throat would constrict tightly around any bread with yeast I ate. At the same time I was drinking lemon juice in my bottled water (that cleared any stomach distress).

My doctor ran a test for Hypothyroidism. We learned that my thyroid was not working correctly. Once I was on the pills for that my constriction problem cleared up and the lemon juice corrected the acid balance in my stomach.

My apparent wheat allergy was gone. These are a couple of simple solutions that worked for me. Just something to think about. Good luck with your child's problem.