I have extremely bad joint pain in my right elbow, shoulder, hip, lower back, and fingers that come and go. With just a little bit of cold for a short time I lose circulation in my hands and feet and they turn blue then white. I have a swollen lymph node on my left side of my neck that wont dissappear and its been 7 months. I have a small nickel size rash on my scalp that has been with me for about 5 years it is scaley and red and raised. I was tested for Lupus 8 years ago and it was positive, tested about a year ago and negative. My grandmother died of Lupus and it just seems to be fitting the bill. I am a little scared and very painful. Just want some ideas here.
2007-10-22 05:53:45 · 8 answers · asked by fancy 5 in Health ➔ Diseases & Conditions ➔ Other - Diseases
Thanks wiseone.... Sounds like I am not the only one who is the life of the party.
2007-10-22 06:01:08 · update #1
Dear it really does sound like you have a rheumatological condition. I have Rheumatoid Arthritis. I take Remicade infusion treatments ( Like Chemotherapy through my veins) every 6-8 weeks, and other medicine for it every day. I too have the severe joint pain and wonder sometimes if mine may actually be lupus too. If it is from what I have researched the drugs my rheumatologist gives me is the same as what they would treat me with for Lupus have some scaly places too. I also have big knots on my wrist , hands, and this disease just has my whole body, spine and all. I had juvenile R.A. too. I suggest you go to the specialist to see if this is his diagnosos. They did blood work on me, it wasn't showing, then we did a series of MRI's and found it in several places in my body. I suggest the MRI's. Now it shows in the blood work up too. Best of luck to you. I wouldn't wish this pain on my worst enemy, (if I had one, LOL!) Try to get to the bottom of it before it gets you down all the way. Keep your head up like I try to do, and keep on pushing. I ride a scooter (kind of like a wheel chair) and I am only 43 years old. I still put on my make-up, jewelry (what I can still wear due to disfigurment) and look like I am fine as much as possible. I have a wonderful husband with 3 older kids 24,21,and 19 years old, and 2 grandchildren. I still force myself to cook , but sometimes I have to have assistance. I will not let this get the best of me. I hate it when people that have horrible remarks to make to us when we mention being sick and worried. These people best remember that what comes around, does go around, and I hope they are made to understand the pain! Best of wishes to you honey, I will keep you in my prayers...
2007-10-25 06:22:32 · answer #1 · answered by Anonymous · 0⤊ 0⤋
Lupus is the best single explanation for these things - almost classic symptoms, but its possible that you have several unrelated things. Lupus symptoms vary so much that a reliable diagnosis cannot be made just from symptoms.
In your grandmother's time, there wasn't any treatment for lupus. Today, there still isn't a cure, but there are treatments that keep the disease from progressing. It would be a good idea to see a doc to get on top of this. Each time lupus flares up, it does damage to some of the organs. Drugs to control the flareups will provide some relief from the symptoms, but more importantly, they can prevent organs from becoming irreparably damaged.
2007-10-22 06:28:35 · answer #2 · answered by formerly_bob 7 · 1⤊ 0⤋
Once you have lupus it does not go away like the chicken pox. Lupus is a remitting flaring disease and it can affect any and every part of the body.
Get yourself to a rheumatologist. There is no definitive test for lupus. You need an experienced clinician.
2007-10-22 15:33:27 · answer #3 · answered by Linda R 7 · 0⤊ 0⤋
I hope you have a good rheumatologist!
It sounds to me like it could be lupus. PMR would be a consideration also. There is no specific blood test to say yes you do or no you dont have lupus. and lupus is called the disease of 1000 faces for a good reason, it can be really hard to pin down and diagnose, and then to successfully treat.
All i can really offer is the suggestion that you find a really good rheumatologist and see him or her if you already have one. If it is lupus, or any other rheumatological disease, and it certainly sounds like one, there ARE treatment options available.
2007-10-22 06:01:35 · answer #4 · answered by Anonymous · 1⤊ 0⤋
Life is a individual factor. I would not fear approximately contributing to society as being the primary asspect of your lifestyles. Enrich your self and be convinced with that. You have to believe very enormously of your self to think that your contributions could affect our society. For that, you have to undergo, only for your self and the few round you! I believe that you're priceless, sure, virtually priceless.
2016-09-05 19:53:06 · answer #5 · answered by ? 4 · 0⤊ 0⤋
it may be but i very doubt it. i would go to the doc. and have them run some further tests into it
2007-10-22 06:01:17 · answer #6 · answered by Anonymous · 1⤊ 0⤋
could be, you need to have blood tests again and also have some immunology tests
good luck
2007-10-22 06:00:37 · answer #7 · answered by donnajaneindigo 4 · 1⤊ 0⤋
Yes....you are starting to slowly deteriorate and will soon be pushing up daisies. Might as well spend all your money now, and enjoy life to its fullest....cause you are about to expire.
2007-10-22 05:57:34 · answer #8 · answered by Anonymous · 0⤊ 4⤋