does anyone know of this sickness?

Question

Does anyone know anyone or know anything about fibrus displasa....

If you want to know about it the little girl i babysit has it....
Go to this web site
www.myleighspalace.com

please if you know anything about it tell me

Answer 1

Poor girl,I am sorry to her.

Anyway Fibrous Dysplasia is a bone disorder wherein a scar-like fibrous tissue develops in place of normal bone. Such abnormal tissue before birth due to some genetic mutations and it is hereditary. As the bone grows, the softer, fibrous tissue expands. As the result, the affected bone becomes deformed and brittle. It usually develops before the age of 15.The cause is unknown and there is no cure for it.

Which bone is affected for now? Ususally only one bone is affected and as it progresses it may start to affect another bones too. Bones most commonly affected are thighbone,leg bone,pelvic bones,ribs,skul,facial bones,and upper arm bone.

When the conditions becomes severe it may result to pain in the bones,difficulty in walking, some bone deformities and fractures, vision and hearing loss,arthritis,and may possibly end up to cancer.

There is no cure but there are treatments offered. If there is no progression nothing is done usually but just observerd continuesly. If the condition progresses, some medication are offered and some surgery may be required to correct some consequences such as fructures and deformities.

Answer 2

Fibrous Dysplasia
What is fibrous dysplasia?
Fibrous dysplasia is a chronic disorder in which bone expands due to abnormal development of fibrous tissue, often resulting in one, or more, of the following:

uneven growth of bones
pain
brittle bones
bone deformity
Any bone can be affected. More than one bone can be affected at any one time, and, when multiple bones are affected, it is not unusual for them to all be on one side of the body. However, fibrous dysplasia does not spread from one bone to another. The most commonly affected bones include the following:

femur (thighbone)
tibia (shin bone)
ribs
skull
facial bones
humerus (the bone of the upper arm)
pelvis
vertebrae in the spine (less often)
Some people develop hormonal problems and a condition called McCune-Albright syndrome. McCune-Albright syndrome, another form of fibrous dysplasia, includes different symptoms, such as early onset of puberty and skin spots, called café-au-lait spots.

Fibrous dysplasia usually occurs in children ages 3 to 15, but it sometimes is not diagnosed until adulthood. It is found equally between males and females.

What causes fibrous dysplasia?
The exact cause of fibrous dysplasia is not known, but it is believed to be due to a chemical irregularity in a specific bone protein. This bone protein abnormality may be due to a gene mutation present at birth, but it is not known to be an inherited disorder.

What are the symptoms of fibrous dysplasia?
The following are the most common symptoms for fibrous dysplasia. However, each individual may experience symptoms differently. Symptoms may include:

a waddling walk
bone pain (as a consequence of the expanding fibrous tissue in the bone)
bone deformity
bone fractures
scoliosis - a lateral, or sideways, curvature and rotation of the back bones (vertebrae), giving the appearance that the person is leaning to one side.
The symptoms of fibrous dysplasia may resemble other bone disorders or medical problems. Always consult your physician for a diagnosis.

How is fibrous dysplasia diagnosed?
In addition to a complete medical history and physical examination, diagnostic procedures for fibrous dysplasia may include the following:

x-ray - a diagnostic test which uses invisible electromagnetic energy beams to produce images of internal tissues, bones, and organs onto film.
biopsy - a procedure in which tissue samples are removed (with a needle or during surgery) from the body for examination under a microscope; to determine if cancer or other abnormal cells are present; to remove tissue from the affected bone.
computed tomography scan (Also called a CT or CAT scan.) - a diagnostic imaging procedure that uses a combination of x-rays and computer technology to produce cross-sectional images (often called slices), both horizontally and vertically, of the body. A CT scan shows detailed images of any part of the body, including the bones, muscles, fat, and organs. CT scans are more detailed than general x-rays.
blood tests
Treatment for fibrous dysplasia:
Specific treatment for fibrous dysplasia will be determined by your physician based on:

your age, overall health, and medical history
extent of the disease
your tolerance for specific medications, procedures, or therapies
expectations for the course of the disease
your opinion or preference

Answer 3

The above answerers gave you some great information; I just wanted to tell you that I went by the ^^above website, and she is just CUTE as a BUTTON!!!!

Precious! Good luck with everything!!!!!! I wish her all the best, and you as well!