EHLERS-DANLOS HYPERMOBILITY SYNDROME/ HYPERMOBILITY SYNDRoME!?

Question

So tonight I was talking to a friend who has a severe form of Ehlers-Danlos Syndrome....and she saw the way that my joints are, and how "flexible" I am and how strechy my skin is. So she commented on the possibility of me being a hypermobile.
I went to the HMS website and got 9/9 on the beighton[sp?] test.
[that consisted of me seeing if I could extend my elbows and knees beyond what was considered normal, pulling my fingers back, touching the floor with my palms [without bending my knees], etc...]
5 out of 7 days of the week, I experience joint pain [in my back, knees, fingers]
I just told my aunt [who is a nurse] about it, and she shrugged it off saying "All the women in our family can do that".
Which is funny because It's HEREDITARY.

so...any doctors out there that can confirm or dismiss my suspicions?
what should I do?

Answer 1

Glad to report I am not a Doctor. I have Rheumatoid Arthritis and at the young age of 49 have just been told I have Hypermobility, but late than never I suppose. I guess the same rules apply and that is joint protection. In other words if you have this flexibility do not over extend the joints otherwise you will get painful joints. If you are worried then consult a Doctor.