How to cope with CSY?

Question

Have you heard of it? Its like when you vomit blood. Its like a disease that doctors are hoping to cure soon. My bf has it and I"m worried. How can I deal with it? He goes in every month to get his blood drained since he produces too much which makes him vomit. So basically each month theres a chance of him dying. His mother had CSY as well and she died from it. How can I deal with it? I care a lot about him but sometimes he trys to like skip out on his blood draining appointments. Its scary he already has his will written out and everything...

Answer 1

I am so sorry. All you can do is pray and encourage your BF to take care of himself.