What are the Long Term Effects of Infantile Seizures?

Question

Hi!

I'm a 25yo WM who was diagnosed with "Infantile Seizures" at apx age 1 or 2 and placed on phenobarbital until apx age 4. Now I'm 25 with a lot of questions about the long term effects of both the seizures (I had 2 episodes) and the medication I was on. Sorry I can't be more exact on dates, my mom died a few yrs ago and was the one who would have known.

What I Know
Until age 4 when I came of the pheno I was a healthy, slightly underweight child, by the time I started kindergarten I had ballooned to nearly 100lbs.

Second I have very few memories of childhood up to age 12.

Third I've had some severe issues with depression and have been predominantly unresponsive to or had severe adverse reactions to every depression medication I've been on.

Before someone gets the wrong impression, I'm not sure that these are inter-related or causative, I just want to know if anyone else is in the same boat or if anyone else has any information regarding the situation I'm in. Thanks!

Answer 1

If you have had no seizures in a very long time, you should have no long term effects of your infantile seizures. Phenobarbital has a tendency to cause hyperactivity in some children, and is not commonly used for seizure control any more, at least in our area. Hyperactivity generally ceases when the medication is stopped. (Seizure medication is usually stopped gradually.)

Personally, I don't think your other problems are related to the infantile seizures.

Answer 2

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