Who else here has epilepsy?

Question

The type I have increasingly gets worse as you get older. I now can no longer work. I just want to know if anyone out there is in my situation. How do you deal with it?

I have had a hysterectomy & my meds are changed constantly, Gayle :-) There really is no stopping the progression of this type of epilepsy that I have. I really appreciate your input :-) Just haven't run into anybody out there that has juvenile myclonic epilepsy (started when I was 12, very mild).

Thank you for your wishes, dink2925 :-) You are correct, so many people don't know what to do & it is embarassing to have a seizure in public. Again, thank you :-)

I meant to thank you, Gayle, I am sorry. So thank you :-)

Answer 1

I have epilepsy too. I have had it since birth. many things trigger my seizures so i never know what will happen. in most of my adult years my biggest triggers was that hormone change also. It still is but it my be changing slow as i change slowly too. i dont have the same kind of ep as u. it is hard for me to keep up with what kind of what excetly i have cause it changes. right now my seizures are mainly petit mals.
excuse my spelling. ty

Answer 2

I am 53 and mine got better once I had a hysterectomy. It stopped the monthly hormonal change which was usally the trigger.
Now all that triggers them might be a ceiling fan. There are so many different kinds of epilepsy.
Maybe you should go back to your doctor. Perhaps your meds need changing.

Answer 3

I don't but as a former police officer I had to deal with people with epilepsy many times when they were having an attack in public. I recall how most bystanders refused to aid in any manner and only stood around and gaped. I remember how fragile epileptics seemed after an attack and how embarrassed most were that this had happened to them in public.

My heart goes out to you. I wish you the best. Good luck.