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Me and my wife have been married for ten years for the most part it has been good, about five years ago we found out she has muscular dystrophy she has gotten so weak that normal everyday task take forever and has became to much to bear at times, my back kills me from lifting her so much, I don't want to go anywhere or do anything with her or my daughter because of how hard things are, my family or hers is no help to me either I have begged God for help but I get no answers is there anyone who can please help me or tell me what to do?

2007-06-05 10:50:43 · 11 answers · asked by Daniel S 1 in Family & Relationships Marriage & Divorce

11 answers

i can relate to what you are going through. I have multiple health problems and 2 yrs. I had a stroke where my husband had to do everything until I was able to get back on my feet.

Do you belong to a church? check to see if they have any groups that help out parishoners in need until they get back on their feet. Ask her MD if she qualifies for Hospice. My grandma has dementia & has been hospitalized many times for other problems. Her doctor said that she is a candidate for Hospice b/c she can't care for herself. It was a Godsend to my folks because the RN was oncall 24/7 whenever she had an attack, her meds are always adjusted accordingly, plus they received the necessary spiritual suppport in caring for her. Hospice isn't just for the dying..it's for families like yours that has a very sick member who needs constant medical attention. look into it. If your wife has Medicare, it will be covered 100%.

2007-06-05 17:07:02 · answer #1 · answered by Anonymous · 0 0

Im sorry to hear about your wife and it does take a toll on those who care for an ailing family member. There are in home nursing services that are available which may be covered by your health insurance or if you are considered low income, possibly for free. Even if you can only get someone 1 or 2 days a week, this would at least give you some type of break from what is probably grueling physically and emotionally. You are a good man as many would have flown the coop by now. Good luck to you in this matter.

2007-06-05 17:58:36 · answer #2 · answered by Anonymous · 1 0

well; I am sorry that this is happening to your wife. I am sure that she is very miserable. You should think about getting a nurse to come in and help. It will take some of the stress off of you both and you can take more time enjoying one another when you can. Also if you attend a church you can always go there for help. I am sure that there are people that attend your church that would donate some of there time to help your family.
Please don't get down on God for this. I know that it is hard and it hurts. I see that you having mean "Begging God and there has been no answer." In your words; Please know that God is a forgiving and loving Father, this is not his doing and there is always a reason and a lesson. I know. I suffered through cancer and the death of my mother all with in a year. Don't blame God. Know that he is the answer, the way and the light. Trust in him and know that there are people out there that will help.

2007-06-05 18:00:12 · answer #3 · answered by The Voice Of Reason 4 · 1 0

First, are you a Christian? If you are then you have done the first step right. Praying to God, just remember that the answers come in his time not yours. Since your family and her family are not really helping in any way, have youthought of asking your church for help? If you pastor and your church do not know what is going on how can you ask for preyer yet alone help. Remember what God said,"ask and ye shall recieve" You first need to ask God what to do. If he has not responed maybe you and you famliy should pray togther. Tell your pastor what is going on and ask for preyer. Ask him to place hands on her and put oil on her head as you pray. Remember God made the laim to walk with a touch of his hand because he had faith. Keep your faith and God will answer your prayers.

2007-06-05 18:02:43 · answer #4 · answered by kandyrain 1 · 1 0

I agree with Molly. Contact a caregiver support group. You can find tons of them on the Internet. And your local churches will help you if you will only ask them. Your local churches will provide you with people who can give you hands on help, strong people for lifting and smart people for finances and talented people for cooking and cleaning. All you have to do is ask! Now get out there and get to asking!

2007-06-05 18:06:30 · answer #5 · answered by John Timothy 5 · 0 0

Sorry about your situation. I really don't know what to say to that except that you really have to be strong for her if you love her. I know it is hard for you right now, but think about how she feels. She didnt ask for this you know. Do you get any time alone? Do you have any friends you can confide in? Or go places with? Sounds like you need to have some fun for yourself. Everyone does.....don't feel bad for feeling this way either.......its ok...just deal with it the best way you can. Good Luck!!

2007-06-05 17:59:51 · answer #6 · answered by ? 2 · 0 0

Dear Daniel,
I have no personal association with MD, but know from the Parkinson's group that help is available.
Found this on google, feel free to print it out and be in touch, folks are out here who can help, and more of us who care, because we know you do so deeply.
You have my heart and my prayers.
Sincerely,
Susie
********************************************

Who to Contact

Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, Arizona, USA 85718
1-800-572-1717
Email: mda@mdausa.org
Web: http://www.mdausa.org/
MDA fights forty neuromuscular diseases through a worldwide research effort, a nationwide program of medical services, and professional and public health education. MDA's Medical Advisory and Scientific Advisory committees review projects that will increase knowledge in the neuromuscular field and may lead to treatments or cures for muscular dystrophy and related disorders. MDA's Task force studies all aspects of genetic defects implicated directly or indirectly in neuromuscular diseases. Their patient services program provides comprehensive medical services to children and adults with neuromuscular diseases.

MDA clinics provide diagnosis and follow-up care from specialists. Through local chapters MDA patients receive many other direct services, including assistance with purchase and repair of wheelchairs, recreation at summer camps, and selected transportation assistance. MDA publishes and distributes a wide variety of print and audiovisual materials to promote public understanding and provide information to parents and caregivers of MDA patients. They offer a quarterly newsletter, MDA Reports, a publication "Quest", and a booklet for siblings,"Hey! I'm Here Too!" along with other brochures and fact sheets.



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Where to Go to Chat with Others
MD-List
Support and discussion of Muscular Dystrophy

DMD Support List
The DMDSupport List is an email list for parents, families, individuals facing the challenge of Duchenne Muscular Dystrophy (DMD).


Duchenne Muscular Dystrophy
This group is open to anyone interested in making friends, sharing information and support with others affected by this disorder.

Newsgroup: alt.support.musc-dystrophy

2007-06-05 18:25:37 · answer #7 · answered by susieque 4 · 1 0

You should find a caregiver support group or an MD support group - these will give you a resource. You are not alone in this - but you need to find the right people to help you.

2007-06-05 17:55:12 · answer #8 · answered by molly 5 · 2 0

Be the good husband you promised. Do all that she needs for the next few yrs. In the end you will smile knowing you made her last few yrs better for her. I admire men that do that, If I see them in public I always give them a smile. Job well done. Good Luck

2007-06-05 17:56:47 · answer #9 · answered by Anonymous · 2 0

Sorry to hear about your wife. This thing will make your life easier. http://www.spinlife.com/category.cfm?categoryID=108&adv=googleads&tar=patient%20lift%20exact
Patient Lifts | Patient Lift | Hoyer Patient Lifts

2007-06-05 17:57:01 · answer #10 · answered by Anonymous · 0 0

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