I have Duchennes Muscular Dystrophy and i've been trying to find support groups online and i cant find any thing....
Does anybody know about any good support groups for DMD?
2007-06-05 04:24:11 · 5 answers · asked by jd081 2 in Society & Culture ➔ Cultures & Groups ➔ People with Disabilities
DMD is my condition
2007-06-05 04:25:09 · update #1
Here is the link to find a local office for MDA, the national organization that supports research and funding for ALL muscular dystrophy conditions. Just follow the directions, and hopefully your local office will be able to direct you to a nearby support group.
Good luck.
http://www.mdausa.org/locate/
2007-06-05 16:43:35 · answer #1 · answered by pwernie 3 · 0⤊ 0⤋
I hope that this helps because I just searched the web and I found this:
health.groups.yahoo.com/group/
Duchenne_Muscular_Dystrophy (sorry I had to put it on different lines due to how the computer did it when I tried to submit the preview) just put it all in the address line and you will be taken there.
6.1 Support Groups. 6.2 Prognosis. 6.3 Physiotherapy ... is no known cure for Duchenne muscular dystrophy, though recently, stem-cell ...
Quick Links: Genetics - Patho-mechanism - Symptoms
en.wikipedia.org/wiki/Duchenne_muscular_dystrophy - 56k - Cached - More from this site
Good luck
2007-06-05 21:26:25 · answer #2 · answered by Anonymous · 1⤊ 0⤋
Try Yahoo Groups.
2007-06-05 13:09:47 · answer #3 · answered by Anonymous · 0⤊ 0⤋
HELLO,
THIS LINK CAN HELP
http://www.columbia.edu/cu/md/index_files/DMDprojectAboutUs.htm
2007-06-06 00:34:39 · answer #4 · answered by Dr. Albert, DDS, (USA) 7 · 0⤊ 0⤋
Well, I just found one...um...not sure if this is helpful to you :
www.dmdfund.org.
?? Yay? Nay?
2007-06-05 11:58:30 · answer #5 · answered by Anonymous · 0⤊ 0⤋