urinary problem?

Question

(NOTE: THIS IS NOT A UTI !)
I have always had horrible pain (bladder) for a long time now. Im so over it, I just don't wanna feel it anymore, I don't wanna feel when it contains urine, when it doesn't, when its infected, ever!
I've been to doctors for this pain, it isn't a uti or treatable...
However, I wanna have the nerves cut. I don't know if this would require pelvic nerves, or the stretch receptors.
I've only done minor research. I haven't made any decisions yet, but I want to know how they do this (as I know they can), and how it affects the urinary system etc.

what i really want to know is--
what are the effects of this surgery, does is mean self cath for the rest of one's life? what nerves are cut, does it affect other areas of the body, paralyze others?

Answer 1

Wow, you sound like me about 10 years ago. I started with a UTI and got it treated. 15 days later "it" was back. I got treated again. A bit later and I was at a urologist who did the usual culture and they told me that this time it was not a UTI. They must've thought I was crazy because it felt just like a UTI. It royally sucked!

So this went on and on for about a year. Sometimes ok, sometimes in a great deal of pain. Here are some notes for you to investigate (don't know if they'll help, but hey, worth a try):

- I noted my pain was around my cycle. I think you are a gal, but not sure (if you are a guy, ignore this!). Sometimes the bad pain started a day or two after my period started....sometimes a day or two before.
- This led me to a possible diagnosis of endrometriosis. They did go in and do a laproscopy just to have a look see. After the laproscopy, they put me on the continual birth control pills so I never had a period (well, very infrequently). Two years later I went off the constant pills and was fine ever since.
- After the fact I remembered they were playing with my birth control pills at the time...perhaps it was a reaction to those.
- So I have no idea if it was the "cleaning" of the laproscopy, the changing of the type of pill, or the cycle change by never having a period that ultimately did the trick, but it did.
- Also, I was put on a medication during my painful time called Urispas. It was a life saver for me. It numbed the area and made me feel normal again.
- Finally, a few years after my issue, I read an article about a medical condition affecting the bladder (no cure, but years of pain) that wasn't a UTI...but it was good to read. I just have to find it for you...ah, I think I found something on webmd. Follow the link...

Answer 2

My sympathy. Be careful, the Bladder and nerve system are there to let you know that the bladder is full.< The other thing seems to be indicating an infection>. Your urologist will be able to test for that, but don't go into medical areas without expert guidance. Once those nerves are cut there are no warning sensations.
Spartawo...

Answer 3

It's good you are asking about this surgery B4 you have it. I am a nurse, but this is the kind of question to ask - not 1 Dr - but several. And then do more research on your own. Do not have ANY surgery without first finding out all you can on your own. And don't trust (only) one source (1 Dr., or 1 book, or 1 internet site). It's your body, your life, and your responsibility to gather all the information you can about your condition, what can be done about it and who is the best Dr. for you.

Answer 4

well, if it can be done, you will be incontinent the rest of your life and whined up wearing a diaper. Then you will reek of urine.

There has to be a reason for the pain. I would continue to seek medical help until the issue is resolved. I cannot imagine a competent surgeon who would do such a drastic procedure. If he does, he is a quack and you are a fool for having it done. Then you will be on line complaining of urinary incontinence and why you reek of stale urine.

Beware- you can always find someone to operate on you. Make sure you know the consequences before. You could whined up paralyzed, etc.

Answer 5

Sounds like interstitial cystitis - have you seen a urologist for a cystoscopy? Might be worth a shot - and treatable...