Surg. for ovarian cyst/fallopian removal. 10 months later started having r. temporal lobe seizures & Fibromyal

Question

If someone could please let me know their thoughts.
41 yrs old. Right oophorectomy (beign r. ovarian tumor removal along with fallopian tubes. 10 months later I started having R. Temporal lobe seizures. Stopped periods but still a cycle monthly (I guess) because my seizures happen like clockwork one week out of the month. I have 3-4 in that week.
I also started after my surgery having terrible aches and pains. Lower leg aches and lower arms aches. Terrible back pain and it felt like i had the flu all the time because of the body aches. extremely fatigued. On State disability for one year. I continue to have seizures every month even though I'm on tegretol. The dr just send me to mental health. I am really at a loss because it seems like the seizures, menopause, fibromyalgia, chronic fatigue are all because of the surgery. The Mri shows a r. temporal lobe lesion and thats it. I can't imagine starting to have seizures out of the blue at 41.
Help in Sunny, Danville Calif

Answer 1

I answered your question about maternity leave, so I thought I'd check your questions to see if I could help anywhere else. I noticed your questions contradict each other. In some you say you started menopause, in others you say you're pregnant.

You also mention Tegretol, yet you're pregnant. The drug is category D, meaning you can't take it during pregnancy.

What's up, hon?

Answer 2

HI!

The Epilepsy Foundation of American has a great website - www.efa.org.

I have worked as an educator for people with epilepsy for many years. You may have started having seizures because your hormones have changed. I would urge you strongly to find a neurologist who specializes in epilepsy - - called an epileptologist. Many general practioners, ob-gyn types don't fully understand the realities of epilepsy, so you will have to educate yourself.

There are many other, easier to take medicines out there. Tegratol is just one and if it is the only one you have tried, you may be surprised how a different medicine will help you.

Lots of people have epilepsy - and although starting them at 41 seems odd, it really isn't. You need to get to an epileptologist and get the real story for yourself.

Look up Epilepsy Foundation in your phone book, too. There are a few offices in California and you should be able to get some good information.

BTW: I started having seizures 8 years ago at 36 as a complication to a rare form of anemia that has caused nerve damage - - I totally relate.

Answer 3

I thought you were pregnant?