Does anyone on here suffer with crohns and what treatment do you have?

Question

I have had it for the last ten years it is no fun, especially trying to keep up with two kids. When I am feeling ****.

Answer 1

I find the best treatment is changing my diet. That's the only thing that works to stop the pain and diarrhea.

As a general rule, the grain and cereal foods at the top of this list make the safest, easiest, and most versatile soluble fiber foundations for your meals and snacks.[1]

Rice
Pasta and noodles
Oatmeal
Barley
Fresh white breads such as French or sourdough (NOT whole wheat or whole grain)*
Rice cereals
Flour tortillas
Soy
Quinoa
Corn meal
Potatoes
Carrots
Yams
Sweet potatoes
Turnips
Rutabagas
Parsnips
Beets
Squash and pumpkins
Mushrooms
Chestnuts
Avocados (though they do have some fat)
Bananas
Applesauce
Mangoes
Papayas (also digestive aids that relieve gas and indigestion)

*Please choose a baked-daily, high quality, preservative-free brand. White bread does not mean Wonder.

Why is soluble fiber so special? Because unlike any other food category, it soothes and regulates the digestive tract, stabilizes the intestinal contractions resulting from the gastrocolic reflex, and normalizes bowel function from either extreme. That's right – soluble fiber prevents and relieves BOTH diarrhea and constipation. Nothing else in the world will do this for you.

I've enclosed a link that will give you more information about how to change your diet. I know this works.

Answer 2

hi, i have crohns have had it since i was 17 and now i am 47, i used to be on steriods among a few other tablets for years i managed to have 3 kids as well. i had my 3rd child in 1986 and never fully recovered my crohns was realy bad so i had to have surgery and had most of my colon removed now i feel great. i still get a few symptoms like arthritus and tierdness but on the whole i feel a lot better and i am on no medication now.so i know how crap you can feel.xxx

Answer 3

i really empathise with you and I know what you are going through!! sorry! :(

my mum used to suffer really bad with crohns disease....and no medication or any other procedures helped her. she has since had to have her entire colon removed and is doing just fine now!!!! she had it for 4 years before she couldn't take it anymore and had to have her colon removed.

i can recommend that u drink peppermint tea as much as u can during the day. it soothes the tummy, aids with digestion and tastes great!!! :o)

my mum still gets diarrhoea (but with no pains!!) as is normal when u remove your colon, so she finds the mint tea a great deal of help!!!

she lives a normal life now, does not have to watch what she eats and feels like she never had crohns to begin with!!

good luck with it. i truly hope that u find some comfort soon..i know it cant be easy.....but please please get the tea!!!

Answer 4

I recomend reading a book by the title "the maker's diet" the author suffered of Crohns and shares his story and how he got healthy, mainly it was through eating the right food. God bless you and I will be praying for your recovery. Peace.

Answer 5

I dont have Crohn's but i have found some websites that might be able to help you out.

Answer 6

I know a few people who do suffer from this,,,, one so bad that he has to have surgery from time to time just to drain abcesses from around intestines and kidney area,,,also he had a colostomy done,,, And if he ever gets a flu bug,, he dehydrates in just a few hours,,, Once he woke up with flu in morning and by 4pm was dehydrated and needed hospitalized , his kidneys were shuting down,,

Answer 7

I use marinol

Answer 8

here are some links...

IBD (Inflammatory Bowel Disease) -Crohn’s Disease, Ulcerative Colitis and Colorectal cancer

http://en.wikipedia.org/wiki/Crohn's_disease (wikipedia on Crohn’s disease)
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Crohn%27s%20Disease (National Organization for Rare Diseases…scroll down for support organization list..)
http://www.ccfa.org/ (Crohn’s and colitis foundation)
http://www.ccfa.org/trials/?TMI=3 (find clinical trials in your area)
http://www.clinicaltrials.gov/ct/search?term=crohn%27s+disease&submit=Search (Crohn’s disease clinical trials…don’t forget to turn page)
http://www.clinicaltrials.gov/ct/search?term=Ulcerative+colitis&submit=Search (ulcerative colitis clinical trials..don’t forget to turn page)
http://www.clinicaltrials.gov/ct/search?term=IBD&submit=Search (clinical trials for IBD..don’t forget to turn page)
http://www.clinicaltrials.gov/ct/info/resources (introduction to clinical trials)
http://www.ccfa.org/physician/?LMI=3.6 (find a physician in your area)
http://www.ccfa.org/info/diet?LMI=3.2 (diet and nutrition)
https://www.kintera.org/site/pp.asp?c=hwKTJbN0JwF&b=460531 (IBD..Inflammatory Bowel Disease friendly recipes)
http://www.ccfa.org/info/about/crohns (about Crohn’s disease)
http://www.ccfa.org/info/about/ucp (about ulcerative colitis and proctitis)
http://www.ccfa.org/info/about/diagnose (how is IBD diagnosed)
http://www.ccfa.org/info/about/complications/ (possible complications)
http://www.ccfa.org/info/about/complications/intestinalcomplications (intestinal and local complications)
http://www.ccfa.org/frameviewer/?url=/media/pdf/cancer.pdf (Crohn’s and UC…women’s issues..need adobe reader)
http://www.ccfa.org/frameviewer/?url=/media/pdf/cancer.pdf (understanding colorectal cancer..need adobe reader)
http://www.ccfa.org/info/treatment/medications (types of medications)
http://www.ccfa.org/info/treatment/kidsmeds (treating children and adolescents)
http://www.ccfa.org/info/treatment/maintenance (maintenance therapy)
http://www.ccfa.org/info/brochures/?LMI=3.4 (educational brochures)
http://www.ccfa.org/info/webcasts/?LMI=3.5 (CCFA webcasts)
http://www.ccfa.org/info/surgery/surgerycd (surgery for Crohn’s disease)
http://www.ccfa.org/info/surgery/surgeryuc (surgery for ulcerative colitis)
http://www.ccfa.org/living/?LMI=2 (living with IBD..see topics on the left side)
http://www.ccfa.org/info/links#medorg (medical organizations and support groups)
http://www.ccfa.org/chapters/?LMI=6 (find a CCFA chapter in your area)
http://www.ccfa.org/living/disability/?LMI=2.7 (social security disablility...applying for benefits)
http://www.ccfa.org/info/links#ibdpeople (for people with IBD by people with IBD)
http://www.ccfa.org/info/links#newsgroups (newsgroups and messageboards)
http://www.ccfa.org/research/?LMI=4 (research)
http://www.new-horizons.org/ (organization to help the disabled..resource)
http://www.new-horizons.org/faqcat.html (frequently asked questions about disability help)

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3 books on disease symptoms and treatments

you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse