My mom went today for her 18 week ultrasound but she went kind of early. Anyways we found out the baby hs Gastroschisis and we have beenworried all day. I did a little reasearch. But i would really like to know if this has happened to other people.
Thanks in advance!!! :-)
2007-05-29 17:45:53 · 6 answers · asked by Anonymous in Pregnancy & Parenting ➔ Pregnancy
Firstly, I am sorry you are all going through this. It is a terrible shock. The great thing is, the prognosis for gastro babies is above 95%.
My daughter was born with the condition 3 years ago on Friday. Unfortunately they do not know what causes it.
I will tell you my experience.
When we found out, we were sent to a bigger hospital. There we met a fantastic surgeon who practically said "out of all the birth defects, this is one I would rather my child have" because of the such great outcomes.
I had my pregnancy monitored very carefully. Going for 4d scans once a month and then closer to the due date, once every two weeks. They like to make sure the baby is growing well and that there are no kinks/obstructions/dilations in the bowel. Gastro babies, do tend to grow at a slower rate than "normal" babies.
I was induced at 37 weeks because my surgeon believed that the amniotic fluid starts to break down the bowels. I delivered naturally (there is no research to suggest c-section is any better) and was allowed to cuddle my little girl for a couple of minutes. (They wrapped her belly up with stuff like plastic wrap).
Within an hour they pushed all her intestines back through the hole and taped the hole up with her umbilical cord. (she didn't even have any anaesthetic or sedatives. Just baby painkiller). Sometimes the intestines won't fit back in, as the stomach cavity is really quite small. They do a procedure called a silo, where the intestines are gradually put back in over a couple of days.
My daughter spent 3.5 weeks in the NICU (neonatal intensive care unit) before coming home. The reason they spend so much time in the NICU is they need to get their bowels working again. We were able to cuddle her on day 2 of being in there.
They will have a central line (kind of like a drip) put in which will feed them a substance called "TPN" It will give them all the nutrients they need. They will also have a nose tube which drains this yucky green stuff out of their stomach (as it doesn't have anywhere else to go).
Once the drain isn't draining so much and they start pooping (yes you will be VERY excited for the poops) they will be allowed to feed.
The first feeds are very very small and they gradually increase them until mum is either able to breastfeed them or give them a bottle (I breastfed my daughter, though I had to express up until then)
She is now a very healthy happy little girl, who turns 3 very soon. She does have a funny outtie belly button, but the surgeon is going to fix that. He is a little upset because he barely has to fix any of the bellybuttons (he has over 60 gastro cases). She went fine with feeding, solids etc.
There are some rare cases where some of the intestine will have to be removed or the baby doesn't tolerate feeds, however this is in minority.
I will be thinking of you. I hope everything goes well. Our gastro babies are very cheeky btw.
Feel free to email me if you wish
bindyangel@hotmail.com
2007-05-30 13:24:31 · answer #1 · answered by Anonymous · 0⤊ 0⤋
Yep, my nephew had it. How bad it is can really vary depending on how much of his/her bowel is out. About 90% of babies who have it are completely healthy within a year. With my nephew, he got his first surgery about an hour after he was born. The couldn't fit all of the bowel into his belly, so they put a little patch on there til the skin stretched enough. Now he's a healthy, normal 1 1/2 year old. He's even in the 95th percentile for height in his age group! Although his belly button isn't really there, it's a small price to pay!!
The worst part is the hospital stay, which for my nephew was about a month long.
2007-05-29 17:54:01 · answer #2 · answered by Anonymous · 0⤊ 0⤋
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2016-09-05 16:24:46 · answer #3 · answered by fryback 4 · 0⤊ 0⤋
I have a friend whose baby was born with this condition. He was born naturally...no caesarian which I though would be necessary and a day or so after he was born he had the operation to put his intestines back in his tummy.. He is a perfectly happy healthy 7 year old now....he had no problems at all after his surgery. Best of luck to you and your mum...I am sure it will all be fine!
2007-05-29 18:25:51 · answer #4 · answered by West Aussie Chick 5 · 0⤊ 0⤋
I have worked with children who had this, where the intestines are on the outside of their body. Soon after birth the intenstines are put back inside, hopefully all at once of there is room. If there isn't room, it will be done in 2 surgeries. The babies I have worked with have been totally fine afterwards.
2007-05-29 17:49:20 · answer #5 · answered by Melissa 7 · 0⤊ 0⤋
Someone very close to me had a baby that was born with this, and the baby only lived a few hours. This disease has many levels of complexity, so the best advice is that u need to taIk to your doctor! dont want to scare you, but I wouldnt want to lie either.
2007-05-29 18:19:18 · answer #6 · answered by itismine 2 · 0⤊ 1⤋