My neurologist originally said "primary progressive" and prescribed Copaxone. My insurance company denied the claim. In turn my doctor then asked me a few more questions, diagnosed secondary progressive then prescribed Betaseron injections. Insurance Oked this claim so that is what I have been doing for 2 1/2 years now. What else should I be doing? My doctor is not much help and I have to do all the research myself.
2007-05-24 05:22:43 · 7 answers · asked by Anonymous in Health ➔ Diseases & Conditions ➔ Other - Diseases
I would find a new neurologist if I were you. Your health is too important to trust to someone who is "not much help" as you say.
While he may have changed your diagnosis to SPMS in order for your insurance to approve a treatment, he should have told you about it. If he truly believes that your are SPMS instead of PPMS, then he should have explained his reasonings and what changed his mind.
I don't know what your symptoms are, or what your current abilities and disabilities may be, but if you are SPMS, PPMS, or even RRMS it's important to have a neurologist whom you can trust and respect and whom you feel confident in trusting your health to.
Consider finding an MS clinic and seeing a specialist too, instead of a regular neurologist. I have SPMS, and it has made a huge difference in my care since I started going to a specialist. Good luck with everything!
2007-05-24 14:45:39 · answer #1 · answered by Rebecca M 3 · 0⤊ 0⤋
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2016-05-14 20:57:33 · answer #2 · answered by Anonymous · 0⤊ 0⤋
My sympathy is with you. Years ago my doctor thought I might have MS and I learned quite a bit about it. It turned out that I really had Lyme disease which was treated. MS is never cut and dry. I know 2 people with it and they seem to have periods of numbness and tingling followed by a period of time where they feel virtually normal (remission). One of them is in the latter stages and the periods of remission are less frequent. One thing I do (some of the Lyme symptoms are very similar) is take 2500 mcg of B12 every day along with a multivitamin and 2 B-Complex with C. It can't hurt and I feel it helps with the feeling in my extremities. I also would recommend getting what exercise your body allows such as walking, lifting dumbbells (2-5 lb.), and getting plenty of rest. I hope that everything will go well for you and that you will overcome this disease, and lead a productive life.
2007-05-24 05:42:30 · answer #3 · answered by Anonymous · 0⤊ 0⤋
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2016-10-05 23:26:03 · answer #4 · answered by kurihara 4 · 0⤊ 0⤋
I recommend finding another neuro. This doc is going to be there for the long haul and it doesn't sound like you are in tune with him. You also need a wonderful regular doc, if you don't. I LOVE my neuro and dread when I have to rely on one of his colleagues! PMS ans SPMS are two different ones... I would worry that you dx is wrong. Period. Call the NationalMS Society and the MS Foundation. They have people you can talk to. Their websites are good too. Join a local support group, my local group has 4 men... Good Luck!
2007-05-24 09:36:24 · answer #5 · answered by the bird 2 · 1⤊ 0⤋
There isn't any treatment that is certain to work, and as you have probably seen, the doctors are just guessing. You are probably doing exactly what you need to - keep researching, and take control of your treatments as much as possible. Decline treatments that don't seem to work, or especially if they make things worse. Ask to try treatments that you think might help. Management of this condition is really trial-and-error, and you know better than anyone else how things affect you.
2007-05-24 05:35:44 · answer #6 · answered by formerly_bob 7 · 0⤊ 0⤋
This might sound stupid, but have you ever drank or do you now drink diet coke? I was diagnosed with Lupus and after I quit drinking or eating anything with artificial sweeteners all symptoms went away! just a thought ...but also this is a very serious disease...why not go to MS website and see if there are support groups in your area that could help you with med questions or any other question about MS that you might have. Usually very helpful....good luck
2007-05-24 05:37:39 · answer #7 · answered by Girl with Kaleidoscope Eyes 4 · 0⤊ 2⤋