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For the past 3 years I have had severe leg pain. It was gotten worse over the 3 years. Last november I started having swelling. Sometimes my ankles will be the size of my knees. I am currently on up to 180mg of morphine daily so that I can function and work. I am also on Lyrica and cymbalta for nueropathy. I have seen a neurologist, a vascular specialist, and had tethered cord realease surgery done. I had Spina bifida when I was born and had tethered cord syndrom. I have run out of ideas of where to go next. I am tired of being on the meds. I gained 65 lbs in less than 3 months, which can't help with the pain. I also had a rheumatoid factor that came back extremely high, but since the other blood work has all come back normal the rheumatologist doesn't want to do anything. I need Ideas or suggestions. I'm only 24. Thank god my husband is very understanding and helpful, he has had to carry me into bed sometimes because I can't walk. I need some ideas. Please!!

2007-05-14 09:16:27 · 4 answers · asked by cpiunt 1 in Health Diseases & Conditions Other - Diseases

4 answers

I experience similar symptoms and was diagnosed with reflex sympathetic dystrophy. Water walking has helped me. I also engage in visual imagery that is directed at relieving pain. Try to keep moving so that it does not incapacitate you. I am sorry that you must go through it. Maybe your rheumatologist needs to see you cry. Maybe he will help more

2007-05-21 08:58:38 · answer #1 · answered by TAT 7 · 0 0

I am sorry to know that you suffer from those incurable illness;spina bifida alone if not the milder one you will suffer alot pulse you have also rheumatoid arthritis(possible) and you already see by specialist nothing here can offer you.Only I can suggest you find the best provider in your location such as university hospital in your area.

2007-05-14 16:42:59 · answer #2 · answered by brother3 4 · 0 0

Have you been re-evaluated for tethered cord? It sure sounds like tethered cord symptoms. Not the swelling, but the pain. The swelling could be from possible reduced movement due to pain. I would demand your doctor refer you to a neuro-surgeon and have a full MRI done to determine what's going on.

2007-05-20 11:32:59 · answer #3 · answered by Lesli R 2 · 0 0

No exercise, poor blood circulation, and poor diet. Lack of H20 and too much sugar also, I'll bet. Start with drinking LOTS of water, it's easy to do and in a week or so you'll notice a difference. Good Luck!

2007-05-21 23:10:27 · answer #4 · answered by Anonymous · 0 0

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