people with Peripheral neuropathy?

Question

What are their lives like?
I have it so I want to knonw what to expect in the future? What will the outcome be?

Answer 1

I have had it for nearly 5yrs,and have 0 quality of life,mine is through Guillain Barre Syndrome.I am totally numb from waist down except for the excruiating PAIN which is 24/7 not everybody ends up like me,my Doctors let me go untreated for 12mths maybe if they had realized sooner things would be different.If you want here is a brilliant web site.http://www.npnc.org/main/phpBB2 there are thousands of people out there with it,so you are not alone....Liz.ps the BB2 at the end is capital Bs

Answer 2

I have Arthritis and Raynard's. The PN started at 'stigmata' pain in the center of my hands and feet, severe enough to wake me up in my sleep. Then I noted some strange burning stinging feeling where my shoulder blades almost hit the spine. The drug they put me on Lyrica and that seems to be helping with the symptoms. The outcome will depend on the reason behind PN as in Diabetes, Arthritis. Life still goes on and thankfully has improved since taking the Lyrica. My Do explained that PN is when the nerves 'fire' for no reason, but to a reason who knows. I am due a nerve conduct test end of this month, perhaps I will know more then.